tag:blogger.com,1999:blog-33452962481760098852024-02-07T09:01:27.618-08:00Fighting RSD by Writing About RSDI am fighting this horrible, breath-taking pain the only way I know how: by writing about it!!!!Unknownhttp://www.blogger.com/profile/17663204577997946867noreply@blogger.comBlogger21125tag:blogger.com,1999:blog-3345296248176009885.post-43113260576641930502011-10-24T18:41:00.000-07:002011-10-24T18:41:50.862-07:00The Dalai Lama<em><span><b>Spirituality concerns our own motivation, while secular activity implies working in the world. Because motivation pervades all action, it is important that we have a positive motivation. Whatever we are involved in, whether it's politics, education, medicine, law, engineering, science, business or industry, the naturef our motivation determines the character of our work.</b></span></em><em> --Dalai Lama<br /></em><strong>My comments:</strong><em><br />So many are freaked out over the word spiritual. They link it with "organized religion" and claim it was "rammed down their throat from birth! I want nothing to do with it!!!" That is </em><strong>religion</strong><em> which is gathering in an organized fashion to practice a set of beliefs that may be believed in by that organized group. I quote the Dalai Lama because it is spiritual. I don't share the same religion as he, but I find much attraction in what he has to say because </em><strong>I find it spiritual: it nourishes </strong><strong><span style="text-decoration: underline;">my soul</span></strong><em>...it may not yours. You find what works for you. What feeds you, but do not fear spirituality! <br /><br />You've got nothing to fear in spirituality~tending to one's soul is a good thing. Nourishing it, feeding it, and giving it oxygen by clearing out all the unnecessary "applications" running around in the background--clean out those mental "applications" think clearly, feed your soul...and then more "mental RAM---Random Access Memory, if you will--to borrow from a friend: what is to fear of that??? You think more clearly, you are able to be accountable for yourself (is </em><strong>that what is feared?</strong><em>), and fulfill your life in ways you may have never dreamed possible!!!<br /><br />That is not to fear: that is to seek...to look and search for a "greater knowledge within."<br /><br />I am becoming disabled a bit by pain: my body--</em><strong>not my mind!!! NOT my spirit--YOU CAN'T HAVE THAT!!!</strong><em><br /></em><strong><span><b>The more adept we become at cultivating an altruistic attitude, the happier we will feel and the more comfortable will be the atmosphere around us. But if our emotions fluctuate wildly and we easily give in to hatred and jealousy, even our friends will avoid us. So even for people with no spiritual beliefs, it is important to have a peaceful mind</b></span></strong><strong>. --Dalai Lama</strong><em><br /></em><strong>Alturism</strong><em><span>is defined</span></em><em>:</em><strong> </strong> Unselfish concern for the welfare of others; selflessness<br /><br /><strong><span>My</span></strong><strong>comments: </strong><em><br />There is a satisfaction in helping others. It gives you a feeling within that cannot be topped, and sets you at peace and satisfaction with the world around us--you feel "on top of the world." It gives you a sense of peace.<br /><br />If we cannot control our own emotions and let them run us, it almost always turns negative: haanger,tred, and resentments control us. We then let ourselves become someone we wouldn't even like. And end up </em><strong>not liking.</strong><em> Attitude creeps into it, and then we lash out at those who are trying to help; show us love. Show us kindness and aulturism, and slap away the hand, that is trying to help us...reaching out, however gnarled and twisted and ugly in appearance, it's what's in the heart behind it. Bfind a way to nourish your spirit, I think, even if it's as informal as it gets. Go camping and be in soliecome like that--your friends won't just avoid you: </em><strong>you won't have any!!! </strong><em><br /><br />Solitude with nature; meditate a non-spiritual tape—whatever it takes, to just brinng your body and mind--all connected; some peace.<br /><br />Or you end up alone.</em><br />
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<em>I do what I can to feed, nourish and give oxygen to my soul. <strong></strong></em><br />
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<em><strong>My friends are most important to me!!!</strong></em><br />
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<strong><em><span style="font-family: Arial, Helvetica, sans-serif; font-size: x-large;">Choose your friends wisely!</span></em></strong></div>Unknownhttp://www.blogger.com/profile/17663204577997946867noreply@blogger.com0tag:blogger.com,1999:blog-3345296248176009885.post-89647845779029409702011-10-21T08:39:00.000-07:002011-10-21T08:53:15.422-07:00PAIN DRAWING: Let's be real--children, speak English, and not STUPID???<span style="font-size: large;">Who is sick of forms like this at the doctor?</span><br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjMpMcVerGKsigXbaBKPxQOGzxwo3dtBzkzqyiOQU9ec_yPJzXlXewc0UZyR0xf0MQQCgSmuh6IlAWVObmXUEHcclAp6JwK-No4wcCT8YEh_vnGVrRD6oe2ZfHRijfVPDirP7FzPY6RzLE/s1600/Pain+scale.gif" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="201" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjMpMcVerGKsigXbaBKPxQOGzxwo3dtBzkzqyiOQU9ec_yPJzXlXewc0UZyR0xf0MQQCgSmuh6IlAWVObmXUEHcclAp6JwK-No4wcCT8YEh_vnGVrRD6oe2ZfHRijfVPDirP7FzPY6RzLE/s320/Pain+scale.gif" width="320" /></a></div>
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It's from <em>Mosby </em>books.</div>
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<em>Whaley & Wong's <strong><u>Pediatric</u></strong> Nursing Text book.</em></div>
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<span class="Apple-style-span" style="-webkit-text-decorations-in-effect: none; -webkit-text-size-adjust: auto; -webkit-text-stroke-width: 0px; background-color: white; color: #009933; font-family: arial, sans-serif; font-style: normal; font-variant: normal; font-weight: normal; letter-spacing: normal; line-height: 15px; orphans: 2; text-indent: 0px; text-transform: none; white-space: normal; widows: 2; word-spacing: 0px;"><span style="font-size: large;">Over 18?</span></span></div>
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<span class="Apple-style-span" style="-webkit-text-decorations-in-effect: none; -webkit-text-size-adjust: auto; -webkit-text-stroke-width: 0px; background-color: white; color: #009933; font-family: arial, sans-serif; font-style: normal; font-variant: normal; font-weight: normal; letter-spacing: normal; line-height: 15px; orphans: 2; text-indent: 0px; text-transform: none; white-space: normal; widows: 2; word-spacing: 0px;"><span style="font-size: large;">Speak English? Understand English?</span></span></div>
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<span class="Apple-style-span" style="-webkit-text-decorations-in-effect: none; -webkit-text-size-adjust: auto; -webkit-text-stroke-width: 0px; background-color: white; color: #009933; font-family: arial, sans-serif; font-style: normal; font-variant: normal; font-weight: normal; letter-spacing: normal; line-height: 15px; orphans: 2; text-indent: 0px; text-transform: none; white-space: normal; widows: 2; word-spacing: 0px;"><span style="font-size: large;">Have IQ >85</span></span></div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhh5i6gYEWr0C9m1jqbr-pRkICU9r5-bKORi2CN_LN4KW9fSL1NfSVJZUl3SEVMzqTX3oniD9JfxAG1UCFelxLosTC56QASuXAH74SrBb9kSYEJi3zIF4nP_5hQjOjL-bWxQVz_VpQwvRk/s1600/paindrawingtraditional.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhh5i6gYEWr0C9m1jqbr-pRkICU9r5-bKORi2CN_LN4KW9fSL1NfSVJZUl3SEVMzqTX3oniD9JfxAG1UCFelxLosTC56QASuXAH74SrBb9kSYEJi3zIF4nP_5hQjOjL-bWxQVz_VpQwvRk/s320/paindrawingtraditional.jpg" width="299" /></a></div>
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<span class="Apple-style-span" style="-webkit-text-decorations-in-effect: none; -webkit-text-size-adjust: auto; -webkit-text-stroke-width: 0px; background-color: white; color: #009933; font-family: arial, sans-serif; font-size-adjust: none; font-stretch: normal; font-style: normal; font-variant: normal; font-weight: normal; letter-spacing: normal; line-height: 15px; orphans: 2; text-indent: 0px; text-transform: none; white-space: normal; widows: 2; word-spacing: 0px;"><span class="Apple-style-span" style="-webkit-text-decorations-in-effect: none; -webkit-text-size-adjust: auto; -webkit-text-stroke-width: 0px; background-color: white; color: #009933; font-family: arial, sans-serif; font-size-adjust: none; font-stretch: normal; font-style: normal; font-variant: normal; font-weight: normal; letter-spacing: normal; line-height: 15px; orphans: 2; text-indent: 0px; text-transform: none; white-space: normal; widows: 2; word-spacing: 0px;"><span style="color: black;"><span style="color: black;">PDF can be found at</span></span></span></span><span style="color: black;"><span style="color: black;"><br /><span style="color: black;"><span style="color: black;"><br />
<span class="Apple-style-span" style="-webkit-text-decorations-in-effect: none; -webkit-text-size-adjust: auto; -webkit-text-stroke-width: 0px; background-color: white; color: #009933; font-family: arial, sans-serif; font-size-adjust: none; font-stretch: normal; font-style: normal; font-variant: normal; font-weight: normal; letter-spacing: normal; line-height: 15px; orphans: 2; text-indent: 0px; text-transform: none; white-space: normal; widows: 2; word-spacing: 0px;"></span> <br />
<span class="Apple-style-span" style="-webkit-text-decorations-in-effect: none; -webkit-text-size-adjust: auto; -webkit-text-stroke-width: 0px; background-color: white; color: #009933; font-family: arial, sans-serif; font-size-adjust: none; font-stretch: normal; font-style: normal; font-variant: normal; font-weight: normal; letter-spacing: normal; line-height: 15px; orphans: 2; text-indent: 0px; text-transform: none; white-space: normal; widows: 2; word-spacing: 0px;"><a href="http://www.aapmr.org/patients/conditions/pain/Documents/paindrawing.pdf">www.aapmr.org/patients/conditions/<b>pain</b>/Documents/<b>paindrawing</b>.<b>pdf</b></a><b></b></span><br />
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</span></span>Unknownhttp://www.blogger.com/profile/17663204577997946867noreply@blogger.com0tag:blogger.com,1999:blog-3345296248176009885.post-48110857996169213632011-10-21T08:34:00.000-07:002011-10-24T18:46:21.050-07:00A Day in the Life...of Someone with CRPS/RSD<div style="text-align: center;">
<b><span style="font-family: Verdana,sans-serif;">It doesn't matter what you call it, a day in the life looks much like this </span></b></div>
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<span style="font-family: Verdana,sans-serif;">(assuming it's a <b><i>good </i></b>day)</span></div>
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<span style="font-family: Verdana,sans-serif;">Okay, I don't get Physical Therapy--I'm not even close to ready, so keep this in mind.....</span></div>
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<span style="font-family: Verdana,sans-serif;"> </span><b><span style="font-family: Verdana,sans-serif;"></span></b></div>
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<span style="font-family: Verdana,sans-serif;">I used to rise at 5am to go to work. Now, my alarm sounds at 5 so the pills that <b><i>must be taken on an empty stomach</i></b> can be so I can attempt to choke down something with the pills that <b><i>must be taken with food--like the Vitamin D-2.</i></b> Oh, and the Vitamin D-2. I set the record for the <u><b><i>lowest level ever drawn</i></b></u> in the clinic (amongst my other malnutritional problems).</span></div>
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<span style="font-family: Verdana;">My D-2 was immesureable...my D-3 was <strong><em>barely </em></strong>7. Total was 7...I shall soon know what my blood level was 7!</span></div>
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<span style="font-family: Verdana;">I have met <strong><em>one person </em></strong>who had a level of 6; she has an eating disorder: anorexia.</span></div>
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<span style="font-family: Verdana;">Gastroparesis here, folks. That's the constant nausea and vomiting where you're fortunate if part 2 isn't NUMBER 2.....</span></div>
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<span style="font-family: Verdana;">Meaning, part 2 being something like this:</span></div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhr8WH_16wJXDuSOec1oTvH9jR1ArpS9TTwuWJ5pyJeaIhdZrFl9l975M3P3OJJPFjIS6UTLiGnXAluCYhru5K_CRn0XBUgNgBKgCXxacmLULKmhxG7Ax_NNnxN7nbhyphenhyphenBGBzuxgMi_QlKY/s1600/dog_vomit_toilet.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="148" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhr8WH_16wJXDuSOec1oTvH9jR1ArpS9TTwuWJ5pyJeaIhdZrFl9l975M3P3OJJPFjIS6UTLiGnXAluCYhru5K_CRn0XBUgNgBKgCXxacmLULKmhxG7Ax_NNnxN7nbhyphenhyphenBGBzuxgMi_QlKY/s200/dog_vomit_toilet.jpg" width="200" /></a></div>
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<span style="font-family: Verdana, sans-serif;">Not this:</span></div>
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<strong><span style="font-family: Arial, Helvetica, sans-serif; font-size: x-large;">#2</span></strong></div>
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<span style="font-family: Verdana;">Well, shit, I'm sorry, but--for one, at least the dog puked in the toilet....second, at least the individual responsible for picture #2 of Number two, had the good sense to take the damned picture...how many times have you been asked the details of your last bowel movement?</span></div>
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<span style="font-family: Verdana;">Well, I get asked what my puke looks like..."Breakfast" is usually the response. Or whatever meal I was stupid enough to eat...so there's really no shit (excuse my language on <strong>my blog</strong>,) in my gut to produce like this person has...there's nastier photos, and be grateful I am well enough to use a little humour tonight...</span></div>
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<span style="font-family: Verdana;">And that happens less often. When you carry what you need around in a bag formerly used for a bowling ball, and some of it is pills, ok...most of it; then the siesta mask for the sudden migraines, countless earplugs, a couple jugs of your protein shake--some fennel so you can have a good shit and count them by the week not the month.</span></div>
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<span style="font-family: Verdana;">If your lucky you sleep.</span></div>
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<span style="font-family: Verdana;">If your not you sweat, scream, cry, vomit, take your body weight in pills:</span></div>
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<span style="font-family: Verdana, sans-serif;">This is what my hips look like--the right one is the one they drilled that I got RSD from. The surgeon said ITBS (IT Band Syndrome)...but we've preeeettttttyyyy much ruled that out. At least I am not this poor bastard:</span></div>
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<span style="font-family: Verdana, sans-serif;">Of all the things that suck about RSD/CRPS, is that even a needlestick by someone who is a bloody moron, you are basically fucked (sorry--<strong>my blog, my language, </strong>no one is forcing you to read), but talk about getting enough fluids, I should take a photograph of my meds, which mostly come in liquid....</span></div>
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<span style="font-family: Verdana, sans-serif;">This isn't my slush, but pretty fucking close: don't forget about the pile that I have to chew and crush...some perfectly helpful meds, I have had to stop taking because I couldn't tolerate the taste. And because I have to make a slurry of it.......I chew/crush pills more</span></div>
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<span style="font-family: Verdana;">As my body gives out on me, as the betrayal continues...my right leg constantly feels something like this:</span></div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhuKuw-BQBSGgTLemdlN6wnrl1ImmQtjbIBbRbZXmnKqanuOUjwogaSFWYQnsNPK55sb2OYBFEF8-CovlZtaD8TWP7UtRZm8XN_E9M1xgDQ0AzMWLufKzrQSUnYx_sot6GP3t7Trc9YtDs/s1600/71159_81895946890_145840_n.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="330" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhuKuw-BQBSGgTLemdlN6wnrl1ImmQtjbIBbRbZXmnKqanuOUjwogaSFWYQnsNPK55sb2OYBFEF8-CovlZtaD8TWP7UtRZm8XN_E9M1xgDQ0AzMWLufKzrQSUnYx_sot6GP3t7Trc9YtDs/s400/71159_81895946890_145840_n.jpg" width="400" /></a></div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgm_drViYQ5ErgAceQCOEFaMjHycXs7gT6hwua24XU1im_BLtNgwL_anmE69ydEjYUVT5zCUI48SpivUXTVYMhkhYi9RGU9Ge8My_mrtl_OrdELzw5AqqsGUhnOrhj6LcTZIemIZAzuLE0/s1600/Meds-Pills.jpg" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgm_drViYQ5ErgAceQCOEFaMjHycXs7gT6hwua24XU1im_BLtNgwL_anmE69ydEjYUVT5zCUI48SpivUXTVYMhkhYi9RGU9Ge8My_mrtl_OrdELzw5AqqsGUhnOrhj6LcTZIemIZAzuLE0/s1600/Meds-Pills.jpg" /></a><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi8A7vK3Dq0EQUnctKmfTbNI-Cdntcu4cXVvDuivwpdBKKLg3AzHYGPq_K7uuhw47CvNAOZNfD9rxpD4Kr0fYyzHBHeERJmfXIAhBdgLsfvcwmra5QTS_IhIEVTupJCEqWiOhMjRqQ4bqE/s1600/Meds-Liquid.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi8A7vK3Dq0EQUnctKmfTbNI-Cdntcu4cXVvDuivwpdBKKLg3AzHYGPq_K7uuhw47CvNAOZNfD9rxpD4Kr0fYyzHBHeERJmfXIAhBdgLsfvcwmra5QTS_IhIEVTupJCEqWiOhMjRqQ4bqE/s1600/Meds-Liquid.jpg" /></a></div>
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<span style="font-family: Verdana, sans-serif;">But none of these, or all of these combined accomplishes what I would like to find for RSD:</span> |</div>
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<span style="font-size: x-large;">One plus TWO</span></div>
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<span style="font-size: x-large;">equals</span></div>
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<span style="font-size: x-large;">What feels like a million....</span></div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhRM5WTRYVsJCJNaNPQwmTwxH31f2LvR1pNYKHy-XAJnFnefJhz1n6mng8isxtuBJFWEPT5d0rKYK_oeHzZ2ZoaIYvNxFem3prvs8C3p9zHJTm67J-lICjanXr_y_HrDOBNKAI1hNaD7f8/s1600/256e8b9c529ef19e59a69f3fc783828e.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="200" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhRM5WTRYVsJCJNaNPQwmTwxH31f2LvR1pNYKHy-XAJnFnefJhz1n6mng8isxtuBJFWEPT5d0rKYK_oeHzZ2ZoaIYvNxFem3prvs8C3p9zHJTm67J-lICjanXr_y_HrDOBNKAI1hNaD7f8/s200/256e8b9c529ef19e59a69f3fc783828e.jpg" width="200" /></a></div>
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<span style="font-family: Verdana, sans-serif; font-size: x-large;">And it's fucking all you want!!!!!!</span></div>
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Putting out fire with pills-medications, spinal blocks, etc.....it's crap.</div>
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<em><span style="font-size: large;">This mug reads:</span></em></div>
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<em><span style="font-size: large;">"My own experience with a <strong>chronic painful medical condition exceeds your percieved medical knowledge"</strong></span></em></div>
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<span style="font-size: x-large;">No more "RSD099" please!!!</span></div>
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The first two hours of my day have been hard enough!!!<br />
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<br /></div>Unknownhttp://www.blogger.com/profile/17663204577997946867noreply@blogger.com0tag:blogger.com,1999:blog-3345296248176009885.post-56883544835568104042011-10-20T19:59:00.000-07:002011-11-08T17:41:33.045-08:00An Unwelcome VisitorYou are my unwelcome visitor,<br />
Like a party guest who won't leave<br />
Only you
are so much worse<br />
You come in and in one stroke,<br />
Cause so much suffering,
so much agony,<br />
So much heartache, so much damage...<br />
Living with you every
day is a living hell.<br />
<br />
No one wants you around,<br />
The life I do have you
are najubgy miserable.<br />
A torturous, living, nightmarish living
hell.<br />
<br />
You stalk your victim like a wolf stalks its prey.<br />
But at least
the prey knows where to hide.<br />
You are with me every minute<br />
Of every
hour<br />
Of every day.<br />
Now diagnosed with RSD, <br />
I know you're not going
away...<br />
<br />
Going to hell is where you belong,<br />
I want you to leave me
alone dammit!<br />
I deserve a LIFE!!!<br />
You feed on people,<br />
their negative
feelings,<br />
and that is how you survive,<br />
how you grow and how you
thrive!<br />
<br />
You are worse than a parasite,<br />
but smaller than a tick.<br />
No
one can see you,<br />
Until you have deccimated their lives......<br />
You are the
perpetual thief,<br />
You take everything away from someone,<br />
Life, freedom, and
a sense of peace...<br />
You have solen my selse of well-being,<br />
My ability to
even so much <br />
as get a peaceful slumber<br />
It feels like I am forever your
prisoner<br />
Your servant and your slave.<br />
<br />
I used to love and enjoy my
life.<br />
I was happy, satisfied, productive, and free.<br />
You have stolen it all
from me.<br />
<br />
And with "malice and forethoughought" <br />
as the CJS
says<br />
Like the murderer you are!<br />
Oh, don't you remember Eric? <br />
The tears
his mother still weeps?<br />
The memories of him we all have.<br />
Eric before the
pain and RSD.<br />
Eric after the pain and RSD.<br />
A different man. And different
FATHER.<br />
You crush a person's sense of hope<br />
You steal their spirit. Their
zest for life.<br />
Their desire to live, and hope that something will
help..<br />
Eric drove away his wife; she divorced him;<br />
begged him to come and
see his girls<br />
He refused, didn't want them to "see him that way."<br />
He drove
away his friends, <br />
leaving him with only one,<br />
who's help he also
refused.<br />
<br />
I could let myself fall into your deadly grasp.<br />
Think that if
I had to stay in that life<br />
for the next 20 year, 40 years,<br />
However long I
might have, that, <br />
Well, I might well put a bullet in my brain now<br />
Because
what you have stolen is hope.<br />
<br />
But you can't have mine.<br />
If I have to
close my eyes and talk out loud to Him<br />
I will, I will not, however, let you
steal the ONE thing<br />
that has gotten me through the medical HELL I have
<br />
been through...the MRSA, the sepsis from it,<br />
The bowel resection from
gangrenous bowel,<br />
the poison that floated through my blood both
times.<br />
Both times I lay in the ICU, my temperature higher<br />
than I care to
think about.<br />
and the damage it did too my body.<br />
<br />
But I survived BOTH
TIMES.<br />
<br />
And although it's been longer than I've showered<br />
than I care to
think about, I won't let this<br />
defeat me, I won't let let this beat
me.<br />
Though it feels like my <br />
skin is being burned off<br />
as soon as water
of <br />
ANY temperature (cold, tepid, or hot),<br />
I will grit my teeth and get
through it.<br />
<br />
Because I do not allow in <br />
an Unwelcome visitor.<br />
<br />
Go
away, get out, <br />
you are not welcome here.<br />
<br />
I have two huge
Rottweilers<br />
that can make it to the fence<br />
<span style="color: #ff2600;"><b>in under 4 seconds......</b></span><br />
<span style="color: #ff2600;"><span style="color: #0533ff;">the last dummy who tried to beat them<br />got 55
stitches.<br /><br /><i><span style="color: #ff2600;"><b>How fast can YOU
run???</b></span></i></span></span>Unknownhttp://www.blogger.com/profile/17663204577997946867noreply@blogger.com0tag:blogger.com,1999:blog-3345296248176009885.post-15789258254433631892011-10-19T19:33:00.000-07:002011-10-19T19:49:46.264-07:00Chronic Pain Syndrome: Can't explain/fix it, so we blame the patient...hmmmmmmm<span style="font-family: Verdana, sans-serif;">I don't know if I fell on my own sword, as they say, but I had to look this up....it just reeked.. I was going through insurance claims, and saw this "Chronic Pain Syndrome diagnosis coming (but only really from the Physical Medicine & Rehabilitation Clinic; no on else was submitting this diagnosis--<strong><em><u>THAT is what got my attention;</u></em></strong>) and the fact I'd realized what bastards they were and fired their asses so anything that puffed out of their butthole was suspect-in retrospect, initially it had seemed like a good way to sum up the "plethora" of problems....but sum it up <strong>NOT <em>get to the bottom of it!!!!!!</em></strong><br />
<br />
I was doing just was they were: throwing PT and meds at it (which I'd been doing for <em><strong>AGES </strong></em><strong><u>before I showed up.</u></strong> And I still do PT and some beginner yoga exercises off a DVD I have, and this is DAILY) but I can't use the pool anymore at my friends' apartment because she moved. But water feels like acid on my skin, at this point, so I think right now, I will turn down the masochism.......</span><br />
<span style="font-family: Verdana, sans-serif;"><h2><br />
<span style="font-size: small;"> <br />
But here's the Chronic Pain Syndrome<br />
<br />
<span style="color: blue;"><em>and just when we thought we had some legitimacy, and dropped the stupid crap like Munchausen and all that other bullshit like oh.....ho hum........like how about what's that word when you're trying to get out of work and obligations???? Yeah, love it!!!</em></span></span></h2></span><h2></h2><h2><span style="font-family: Verdana, sans-serif; font-size: small;">Background</span></h2><span style="font-family: Verdana, sans-serif;"> </span><br />
<div class="refsection_content"><span style="font-family: Verdana, sans-serif;">Chronic pain syndrome (CPS) is a common problem that presents a major challenge to healthcare providers because of its complex natural history, unclear etiology, and poor response to therapy. CPS is a poorly defined condition. Most authors consider ongoing pain lasting longer than 6 months as diagnostic, and others have used 3 months as the minimum criterion. In chronic pain, the duration parameter is used arbitrarily. <span style="background-color: yellow;">Some authors suggest that any pain that persists longer than the reasonable expected healing time for the involved tissues should be considered <strong>chronic pain. <span style="background-color: white;">No one ever hear of RSD???</span></strong></span></span><span style="font-family: Verdana, sans-serif;"></span><br />
<span style="font-family: Verdana, sans-serif;"></span></div><span style="font-family: Verdana, sans-serif;"><div class="refsection_content"><br />
CPS is a constellation of syndromes that usually do not respond to the medical model of care. This condition is managed best with a multidisciplinary approach, requiring good integration and knowledge of multiple organ systems (<strong><em>since RSD affects all of them!</em></strong>)<br />
<h3><span style="font-size: x-small;">Recent studies</span></h3><span style="font-size: x-small;">Mork et al investigated whether physical exercise and high body mass index (BMI) influence an individual's risk of developing fibromyalgia. The study included 15,990 women, none of whom at baseline had fibromyalgia or any other physical impairment. By 11-year follow-up, incident fibromyalgia had reportedly occurred in 380 women. The authors noted that only a weak association typically existed between exercise level and fibromyalgia risk; they determined, however, that women who were overweight or obese had a 60-70% greater risk of fibromyalgia than did women of normal weight, with BMI found to be an independent risk factor for the condition. </span><span style="font-size: x-small;"><br />
</span><br />
<span style="font-size: x-small;">In overweight or obese women in the study who exercised for at least an hour each week, the relative risk (RR) for fibromyalgia (in comparison with women of normal weight and a similar activity level) was 1.72, while in overweight or obese women who did not exercise or who did so for less than an hour per week, the RR was 2.09.<sup><a href="javascript:showrefcontent('refrenceslayer');"><span style="color: #004276;">[1] </span></a></sup></span><br />
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<span style="font-size: x-small;">In a study by Alonso-Blanco, a connection was found in women between the number of active myofascial trigger points (MTrPs) and the intensity of the spontaneous pain and widespread mechanical hypersensitivity; nociceptive inputs from these MTrPs may be linked to central sensitization.<sup><a href="javascript:showrefcontent('refrenceslayer');"><span style="color: #004276;">[2] </span></a></sup></span></div></span><br />
<div class="refsection_content"></div><h2 class="refsection_content"><span style="font-family: Verdana, sans-serif; font-size: small;">Pathophysiology</span></h2><div class="refsection_content"><span style="font-family: Verdana, sans-serif;"> </span></div><div class="refsection_content"><span style="font-family: Verdana, sans-serif;">The pathophysiology of chronic pain syndrome (CPS) is multifactorial and complex and still is poorly understood. Some authors have suggested that CPS might be a learned behavioral syndrome that begins with a noxious stimulus that causes pain. This pain behavior then is rewarded externally or internally. Thus, this pain behavior is reinforced, and then it occurs without any noxious stimulus. Internal reinforcers are relief from personal factors associated with many emotions (eg, guilt, fear of work, sex, responsibilities). External reinforcers include such factors as attention from family members and friends, socialization with the physician, medications, compensation, and time off from work. f multiple organ systems. (<strong><em>Let's just bury your bullshit in some terms--> HEAD CASE/DRUG ADDICT, </em>that is what your conclusion(s) are? And reading on....</strong>)<br />
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<span style="background-color: yellow;">Patients with several psychological syndromes (eg, major depression, somatization disorder, hypochondriasis, conversion disorder) are prone to developing CPS.</span></span><br />
<span style="font-family: Verdana, sans-serif;"><span style="background-color: yellow;"></span></span></div><div class="refsection_content"><span style="font-family: Verdana, sans-serif;"><span style="background-color: yellow;"><br />
</span> <br />
</span><a href="http://emedicine.medscape.com/article/310834-overview#a0101"><span style="color: #8d5919; font-family: Verdana, sans-serif;">http://emedicine.medscape.com/article/310834-overview#a0101</span></a><span style="font-family: Verdana, sans-serif;"> (Background)</span><a href="http://emedicine.medscape.com/article/310834-overview#a0104"><span style="color: #8d5919; font-family: Verdana, sans-serif;">http://emedicine.medscape.com/article/310834-overview#a0104</span></a><span style="font-family: Verdana, sans-serif;"> (Pathophysiology)<br />
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Chronic pain syndrome refers to persistent pain that usually has no identifiable source and is associated with abnormal illness behaviors, including expressions of pain (moaning, groaning, gasping, or grimacing) that are grossly disproportional to any underlying cause, substance abuse involving prescription drugs, non-prescription drugs and alcohol; self-imposed prolonged excessive disuse; self-limitation of social and recreational activities; and a self-perception of total occupational disability.<br />
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Chronic pain syndrome is complex and involves multiple factors, but should be considered if a person does not respond to appropriate medical care within a reasonable time frame or if the person's pain behavior greatly exceeds the usual response to a specific disorder.<br />
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<b>Risk: </b>Chronic pain is reported more frequently in women than men. There is no racial predilection for chronic pain. Risk for chronic pain syndrome is increased in individuals with psychological problems such as major depression, somatization disorder, or hypochondriasis.<br />
</span><a href="http://www.mdguidelines.com/pain-chronic/definition"><span style="color: #8d5919; font-family: Verdana, sans-serif;">http://www.mdguidelines.com/pain-chronic/definition</span></a><br />
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<h3 align="left"><span style="font-family: Verdana, sans-serif;">What is chronic pain syndrome?</span></h3><span style="font-family: Verdana, sans-serif;"> </span><br />
<div align="left"><span style="font-family: Verdana, sans-serif;">Chronic pain syndrome (CPS) is a term used to define patients with severe persistent pain from virtually any source which has resulted in marked changes in behavior, self-imposed restriction of daily activities, and heavy, largely ineffective use of the healthcare system. CPS overwhelms all other medical symptoms to the point of becoming the problem itself. It is often accompanied by bouts of irritability, uncontrolled anger, and depression.</span></div><span style="font-family: Verdana, sans-serif;"> </span><br />
<h3 align="left"><span style="font-family: Verdana, sans-serif;">What are the causes of CPS?</span></h3><span style="font-family: Verdana, sans-serif;"> </span><br />
<div align="left"><span style="font-family: Verdana, sans-serif;">CPS has no specific cause but rather is the cumulative result of a combination of conditions including the one(s) causing pain. CPS is not fictitious or psychogenic pain but rather the body's psychophysiologic response to chronic pain.</span></div><span style="font-family: Verdana, sans-serif;"> </span><br />
<h3 align="left"><span style="font-family: Verdana, sans-serif;">Is chronic pain syndrome preventable?</span></h3><span style="font-family: Verdana, sans-serif;"> </span><br />
<div align="left"><span style="font-family: Verdana, sans-serif;">Symptoms of CPS must be recognized early and the disorder treated using a multi-disciplinary approach. There is some optimism that those at high risk of developing CPS will be identified in the future prior to injury, and treated more agressively during the acute phase.</span></div><br />
<span style="font-family: Verdana, sans-serif;"> </span><br />
<div align="left"><a href="http://www.painmd.com/types-of-pain/general-pain/chronic-pain-syndrome.html"><span style="color: #8d5919; font-family: Verdana, sans-serif;">http://www.painmd.com/types-of-pain/general-pain/chronic-pain-syndrome.html</span></a><br />
<br />
<span style="font-size: large;"><strong>IMHO:</strong></span><br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjJ0srZ2zK5FOOtgC_9uP2CjLUhCcR9FwhH4WOhTnByJJXHtD8QRwY9XXAsZdg0Y8mbAnY3-BC243RkQIbibl6P4ETPXOffgNqaJHMiY4RyOnptPK85G4XD0Ou8Xmlbh6RbZPrBobDBAdo/s1600/dog-poop.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="249" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjJ0srZ2zK5FOOtgC_9uP2CjLUhCcR9FwhH4WOhTnByJJXHtD8QRwY9XXAsZdg0Y8mbAnY3-BC243RkQIbibl6P4ETPXOffgNqaJHMiY4RyOnptPK85G4XD0Ou8Xmlbh6RbZPrBobDBAdo/s320/dog-poop.jpg" width="320" /></a></div><strong><span style="font-size: large;"><br />
</span></strong> </div></div>Unknownhttp://www.blogger.com/profile/17663204577997946867noreply@blogger.com0tag:blogger.com,1999:blog-3345296248176009885.post-17829315168094535772011-10-19T00:29:00.000-07:002011-10-19T00:29:06.152-07:00A little hypocrisy...it's out there<span style="font-family: Verdana;"><div align="LEFT">I have had almost nothing but nightmarish experiences with these online "support pages," and I almost landed myself in the hospital with the last one....fucking insane that I was going to give up some a new Lazy-Boy recliner men's size that I can sleep in on occassion (not <strong><em>all the time<span style="font-family: Verdana-BoldItalic;"></span><span style="font-family: Verdana-BoldItalic;"></span></em></strong><span style="font-family: Verdana;">), for a cheap laptop computer so I </span><span style="font-family: Verdana;">couldute post on one of those sites.</span></div></span><div align="LEFT"><span style="font-family: Verdana;"></span></div><span style="font-family: Verdana;"> <br />
<div align="LEFT">P4P is only one example.....there are scads of them out there--DS, Inspire, you</div>name it, it's probably got a title out there...<br />
<br />
<div align="LEFT">And several "BFF" self-appointed drama queens/kings of the site....the Borderline</div>Personality Disordered and Histrionic Personality Disordered type (minor in psych<br />
nursing) seems to be the ones running rampant on each site......and each week<br />
it's like they publish a list of people you are/are not allowed to be "friends" with.<br />
<br />
<div align="LEFT">War after war....and it churns my stomach.....</div><br />
<div align="LEFT">My doctor<strong><em>ordered me off<span style="font-family: Verdana-BoldItalic;"></span><span style="font-family: Verdana-BoldItalic;"></span></em></strong><span style="font-family: Verdana;">, and I ignored him...under threat of hospitalization </span><span style="font-family: Verdana;">and my friend confiscating my computer....I gave in and went "404" (aka, gave into the drama).</span> </div></span><div align="LEFT"><br />
</div><span style="font-family: Verdana;"><div align="LEFT">Then the ones who don't follow the rules that <strong><em>should be there:</em></strong></div></span><div align="LEFT"><br />
</div><b><i><span style="font-family: Verdana-BoldItalic;"> </span></i></b><i><span style="font-family: Verdana-BoldItalic;"></span></i><span style="font-family: Verdana-BoldItalic;"></span><span style="font-family: Verdana;"></span><br />
<span style="font-family: Verdana;"><div align="LEFT">...they promote products; like some things a friend recieved in an email:</div><br />
<div align="LEFT">"NOPALEA produced by Trivita. Nopalea is Cactus juice that has amazing anti-inflammatory properties, anti oxidents, and powerful molecular restorative</div>properties..."<br />
<br />
<div align="LEFT">I get the RSDSA newsletter this is claimed to be in, and <strong><em>no mention.....</em></strong></div></span><div align="LEFT"><br />
</div><b><i><span style="font-family: Verdana-BoldItalic;"> </span></i></b><i><span style="font-family: Verdana-BoldItalic;"></span></i><span style="font-family: Verdana-BoldItalic;"></span><span style="font-family: Verdana;"></span><br />
<span style="font-family: Verdana;"><div align="LEFT">Drama and histrionism runs rampant on all of them. God help you should you</div>cross one. <br />
<div align="LEFT"><br />
</div><div align="LEFT">Question one. And they have medical histories that would make Jesus</div>Christ Himself cringe....but they do it "with such 'courage, grace, and dignity'...and intolerance, hatred, and impatience towards others."<br />
<br />
<div align="LEFT">Kinda backwards, don'tcha think????</div><br />
<div align="LEFT">I do.</div><br />
<div align="LEFT">I dumped my membership to the latest one.</div><br />
<div align="LEFT">I have sworn them off.</div><br />
<div align="LEFT">I will write here. I am the Queen, but I always allow, and welcome comments</div>from readers....My blog is my support network; those who respond will be my<br />
supporters; I have others who aren't posting here, but are still supporters.<br />
<br />
<span style="font-family: Verdana;"><div align="LEFT">And to you, I tip my hat.</div><br />
<div align="LEFT">Your own trials and suffering, you are supporters.</div><br />
God Bless each of you....</span></span>Unknownhttp://www.blogger.com/profile/17663204577997946867noreply@blogger.com1tag:blogger.com,1999:blog-3345296248176009885.post-21533795653126626752011-10-15T20:59:00.000-07:002011-10-15T21:04:19.211-07:00Epidural Spinal Block--So Why Was I Turned Away Last Time? BEFORE I Even Had RSD?<div class="separator" style="clear: both; text-align: center;">
</div>
<br />
<span style="font-family: Verdana,sans-serif;">My neurologist's last great thoughts on this matter were to do an epidural spinal block. Needless (hahahaha) to say, I have some concerns:</span><br />
<br />
<ul>
<li><span style="font-family: Verdana,sans-serif;">Last time I was referred for an ESB for my sciatic pain, I was eventually turned away. Why, you ask?</span></li>
<ul>
<li><span style="font-family: Verdana,sans-serif;">Severe, anaphylactic reaction to iodine, which they do say they need to use to guide the needle, as nonionic contrast is not dark enough for them to see where they're going.</span></li>
<li><span style="font-family: Verdana,sans-serif;">Risk of, as has happened, the steroid, getting into my CSF (cerebrospinal fluid), and then causing a severe, and acute manic episode with probable psychosis (resulted in 4 days in seclusion, 2 days in restraints to protect me from myself</span></li>
<li><span style="font-family: Verdana,sans-serif;">It did not work--not even slightly after multiple tries...I begged them to keep trying when they said, "Hey, it's not <b><i>going</i></b> to work if it hasn't by now," and I was so desperate for relief, I was willing to keep trying, <u><i><b>even when it was clear it wasn't going to work</b></i></u>!!!</span></li>
<li><span style="font-family: Verdana,sans-serif;">If it's done by an interventionalist who is totally clueless as to how to use care with RSD patient, and they do it even <b><i>slightly wrong</i></b>, you can wake up from Stage 2, with fair pain control......you could wake up with raging, rampant, running Stage IV RSD:</span></li>
</ul>
</ul>
<br />
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjzulmLM3Cy3TDE-hwVcbvgX7kktzDJRCS0dA7mTYkwF0AJ3fdbk8XHWt0LWsmrnnhyphenhyphendLAEHgT_hhmU8Wy4XWchHz3Q6MXLxXy_JR1Ij-TAIFOnSY9HXq5mR07o7tXd2Sv9YxlQ1WiY6Mg/s1600/l+%25288%2529.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjzulmLM3Cy3TDE-hwVcbvgX7kktzDJRCS0dA7mTYkwF0AJ3fdbk8XHWt0LWsmrnnhyphenhyphendLAEHgT_hhmU8Wy4XWchHz3Q6MXLxXy_JR1Ij-TAIFOnSY9HXq5mR07o7tXd2Sv9YxlQ1WiY6Mg/s320/l+%25288%2529.jpg" width="240" /></a></div>
<br />
<span style="font-family: Verdana,sans-serif;"><b>This is the mechanism of RSD</b></span><br />
<br />
<span style="font-family: Verdana,sans-serif;">There is an injury to the hand, foot, arm, leg, etc; even hip surgeries can cause RSD.... The Sympathetic chain of nerves is triggered to send a signal to the brain.</span><br />
<br />
<span style="font-family: Verdana,sans-serif;"><b>The Original injury initiates a pain impulse carried by the sensory nerves to the CNS.</b> Instead of the pain calming down, the sympathetic nervous system "gears up for battle," and triggers the inflammatory response...<i>this doesn't mean that ibuprofen will cure but it will help!</i> Anything that helps with the inflammatory process: Omega 3, <u><b>6, and 9 Fish Oil</b></u><b> are powerful NSAIDS!</b><b> </b></span><br />
<br />
<span style="font-family: Verdana,sans-serif;"><b>The resulting symptoms we all know so well:</b> a burning, firey, nauseating pain that can even result in <b><i>muscle spasms </i></b>from their severity, and the muscle spasm causes vascular spasm, leading to increased swelling, sweating, cramping, and pain....left un-checked, it results in more swelling, sweating, cramping, and pain....</span><br />
<br />
<div style="text-align: center;">
<span style="font-family: Verdana,sans-serif;"><b>It's a vicious cycle!!!!</b></span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: left;">
<span style="font-family: Verdana,sans-serif;">Oh, am I giving someone RSD099??? So sorry!!!!!! I honestly meant to just keep it to myself~~not spread the wealth....Gee, I had no idea!!!!</span></div>
<div style="text-align: left;">
<br /></div>
<div style="text-align: left;">
<span style="font-family: Verdana,sans-serif;"><b>But picture that from head to toe, day in and day out...</b> That can happen from <u><i>one incorrectly placed needle, improperly done procedure by a doctor</i></u> inexperienced with RSD!!! Those are few and far between in the area. So it's not so simple as "Gee, I'll try the nerve block (again, even though they didn't do shit for my sciatica!!!)..."</span></div>
<div style="text-align: left;">
<br /></div>
<div style="text-align: left;">
<span style="font-family: Verdana,sans-serif;">Life suddenly gets much more complicated, doesn't it???</span></div>
<div style="text-align: left;">
<br /></div>
<div style="text-align: left;">
<span style="font-family: Verdana,sans-serif;">While I watch my education and career circle the drain.....Well, I kinda knew that was toast~but maybe not forever, I am not going to give up!!!!!! I just wish I had a better timeline; just seems far away right now....</span></div>
<div style="text-align: left;">
<br /></div>
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh0jjyjgV4fHx5eqeGsPyfozE3C_BPc7XoTiAe4JBNDTmEpY1UXBtLr2YZNH1yMxCrihbjv0wvT633GJhFQ2ExbEgUJg9F2elf0sLRPHo_iivPAH1iJY19atmeYaZa68IMV510HgCuLvEc/s1600/CRPS-RSD.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh0jjyjgV4fHx5eqeGsPyfozE3C_BPc7XoTiAe4JBNDTmEpY1UXBtLr2YZNH1yMxCrihbjv0wvT633GJhFQ2ExbEgUJg9F2elf0sLRPHo_iivPAH1iJY19atmeYaZa68IMV510HgCuLvEc/s320/CRPS-RSD.jpg" width="320" /></a></div>
<div style="text-align: left;">
<span style="font-family: Verdana,sans-serif;"><b> </b> </span></div>
<br />Unknownhttp://www.blogger.com/profile/17663204577997946867noreply@blogger.com0tag:blogger.com,1999:blog-3345296248176009885.post-10433114889030513272011-10-15T11:22:00.000-07:002011-10-15T11:22:34.287-07:00How to be Helpful to Someone with RSD, Chronic Pain/Illness<span style="font-size: large;">How to be <b>Helpful </b>to Someone with RSD, Chronic Pain/Illness:</span>
<br />
<br />
<ul>
<li><div style="margin-bottom: 0in;">
<span style="font-family: Tahoma,sans-serif;"><span style="font-size: small;">Say,
“I'm going to the store tomorrow. Is there anything I can pick up
for you?" </span></span>
</div>
</li>
<li><div style="margin-bottom: 0in;">
<span style="font-family: Tahoma,sans-serif;"><span style="font-size: small;">Listen
without advising or judging. Listen until it hurts...then listen
some more.</span></span></div>
</li>
<li><div style="margin-bottom: 0in;">
<span style="font-family: Tahoma,sans-serif;"><span style="font-size: small;">Offer
to take him to the doctor or dentist and do something fun
afterwards--Beat them inside and pay the copay for them (usually
only $15-30, but on disability this adds up!!!)</span></span></div>
</li>
<li><div style="margin-bottom: 0in;">
<span style="font-family: Tahoma,sans-serif;"><span style="font-size: small;">If
they have furry friends, stop by with a bag of whatever brand your
friend feeds their cat/dog. Or cat litter, or a new "pooper
scooper" that might be easier for them to manage.... </span></span>
</div>
</li>
<li><div style="margin-bottom: 0in;">
<span style="font-family: Tahoma,sans-serif;"><span style="font-size: small;">Offer
to take care of her kids for the day. </span></span>
</div>
</li>
<li><div style="margin-bottom: 0in;">
<span style="font-family: Tahoma,sans-serif;"><span style="font-size: small;">Show
up with cleaning products. Bring her a favorite beverage and a new
magazine and tell her not to be embarassed...”That you've seen it
all before” </span></span>
</div>
</li>
<li><div style="margin-bottom: 0in;">
<span style="font-family: Tahoma,sans-serif;"><span style="font-size: small;">Bring
her flowers or a healthy dish. Or both.</span></span></div>
</li>
<li><div style="margin-bottom: 0in;">
<span style="font-family: Tahoma,sans-serif;"><span style="font-size: small;">Give
him a gift subscription to an encouraging magazine.</span></span></div>
</li>
<li><div style="margin-bottom: 0in;">
<span style="font-family: Tahoma,sans-serif;"><span style="font-size: small;">Send
a gift card to his/her favorite online reading, hobby site--many
RSD-ers are on disability or some form, if they have a “Kindle,”
for example a gift card for one or two Kindle books; or one or two
audible.com books (<a href="http://www.audible.com/">www.audible.com</a>
is a Amazon company)</span></span></div>
</li>
<li><span style="font-family: Tahoma,sans-serif;"><span style="font-size: small;">Give her a gift
certificate for a massage, a pedicure or the movies. Something that
when you are “living broke” you aren't going to have for “an
<i><b>occassional extra</b></i><i><span style="font-weight: normal;">”</span></i></span></span><br />
</li>
<li><span style="font-family: Tahoma,sans-serif;"><span style="font-size: small;">Buy him an
encouraging book and include a bookmark with a note from you.</span></span><br />
</li>
<li><span style="font-family: Tahoma,sans-serif;"><span style="font-size: small;">Buy matching
mugs and agree that whenever either of you uses or washes them, you
will pray for the other person.</span></span><br />
</li>
<li><span style="font-family: Tahoma,sans-serif;"><span style="font-size: small;">If you are a
neighbor, ask if they would like you to bring their mail (they may
be working on increasing activity) or if they want someone to walk
to the box with and back, and then help them get settled and
comfortable... </span></span>
<br />
</li>
<li><span style="font-family: Tahoma,sans-serif;"><span style="font-size: small;">Have a “girly
day,” visiting a craft show, having tea/Starbucks, getting your
hair done, or seeing a “chick flick.”</span></span><br />
</li>
<li><span style="font-family: Tahoma,sans-serif;"><span style="font-size: small;">Help and
encourage home PT programs—offer a ride to the YMCA, maybe while
your kids are in lessons</span></span><br />
</li>
<li><span style="font-family: Tahoma,sans-serif;"><span style="font-size: small;">Ask what, if
any, chores they want or need help with (this part can be hard to
admit for your friend—be patient. Let them know to think about
it, write down your email (clearly), and let them know when they are
ready they can ask.</span></span><br />
</li>
<li><span style="font-family: Tahoma,sans-serif;"><span style="font-size: small;">As much as your
heart may be in the right place, <i><u><b>do not email articles on
“RSD that you just happened across”</b></u></i><span style="font-style: normal;"><span style="text-decoration: none;"><span style="font-weight: normal;">.
Chances are-to them, it's RSD099, and it's frustrating, and can
feel somewhat condescending. Remember: They live with RSD every
minute of every hour of every day, and it's little more than a waste
of time, and kind of hurtful.</span></span></span></span></span><br />
</li>
<li><div style="font-style: normal; font-weight: normal; text-decoration: none;">
<span style="font-family: Tahoma,sans-serif;"><span style="font-size: small;">Trust that your friend
is working with at the very least, a neurologist, who has treated
RSD before.</span></span></div>
</li>
<li><span style="font-family: Tahoma,sans-serif;"><span style="font-size: small;"><span style="font-style: normal;"><span style="text-decoration: none;"><span style="font-weight: normal;">Trust
is the basis of every friendship, every good and working
relationship. Trust that your friend will not jump into the deep
end of the pool blindfolded on the first day. Also remember that
</span></span></span><i><span style="text-decoration: none;"><b>insurance
companies, </b></span></i><span style="font-style: normal;"><span style="text-decoration: none;"><span style="font-weight: normal;">not
</span></span></span><i><span style="text-decoration: none;"><b>doctors
</b></span></i><span style="font-style: normal;"><span style="text-decoration: none;"><span style="font-weight: normal;">basically
run the show, so know that it's usually some pencil pusher with a
pocket protector, a computer, no working knowledge of RSD, etc,
though that is going to dictate what treatments your friend has to,
for the sake of cost, even with the best insurance, try the less
expensive methods first.</span></span></span></span></span><br />
</li>
<li><span style="font-family: Tahoma,sans-serif;"><span style="font-size: small;"><span style="font-style: normal;"><span style="text-decoration: none;"><span style="font-weight: normal;">But
know she has done her homework, thought about it, </span></span></span><span style="font-style: normal;"><span style="text-decoration: none;"><b>prayed
about it</b></span></span><span style="font-style: normal;"><span style="text-decoration: none;"><span style="font-weight: normal;">,
and probably talked to some of her spiritual guidance leaders, and a
few other friends she trusts first. If you wonder why you're not
amongst them, ask yourself about your actions during that time in
her life:</span></span></span></span></span><br />
<ul>
<li><div style="font-style: normal; font-weight: normal; text-decoration: none;">
<span style="font-family: Tahoma,sans-serif;"><span style="font-size: small;">Did she feel judged?</span></span></div>
</li>
<li><div style="font-style: normal; font-weight: normal; text-decoration: none;">
<span style="font-family: Tahoma,sans-serif;"><span style="font-size: small;">Did you send continual
articles on RSD to her during the early times of her diagnosis?</span></span></div>
</li>
<li><div style="font-style: normal; font-weight: normal; text-decoration: none;">
<span style="font-family: Tahoma,sans-serif;"><span style="font-size: small;">Did you tell her to
“pray more?”</span></span></div>
</li>
<li><div style="font-style: normal; font-weight: normal; text-decoration: none;">
<span style="font-family: Tahoma,sans-serif;"><span style="font-size: small;">Perhaps that “God
was sending her a message?”</span></span></div>
</li>
<li><span style="font-family: Tahoma,sans-serif;"><span style="font-size: small;"><i><span style="text-decoration: none;"><span style="font-weight: normal;">Telling
her</span></span></i><span style="font-style: normal;"><span style="text-decoration: none;"><span style="font-weight: normal;">
that she was making a “bad” choice?”</span></span></span></span></span><br />
</li>
<li><div style="font-style: normal; font-weight: normal; text-decoration: none;">
<span style="font-family: Tahoma,sans-serif;"><span style="font-size: small;">Telling her she was
“drugged”</span></span></div>
</li>
<li><div style="font-style: normal; font-weight: normal; text-decoration: none;">
<span style="font-family: Tahoma,sans-serif;"><span style="font-size: small;">Looking at her funny
when some of the other coping, such as ear plugs, if done in public
were somehow “wrong?”</span></span></div>
</li>
<li><div style="font-style: normal; font-weight: normal; text-decoration: none;">
<span style="font-family: Tahoma,sans-serif;"><span style="font-size: small;">Interfering with
previous medical care in past years?</span></span></div>
</li>
</ul>
</li>
</ul>
<div style="font-style: normal; font-weight: normal; text-decoration: none;">
<br /><br />
</div>
<ul>
<li><b><span style="font-family: Tahoma,sans-serif;"><span style="font-size: small;"><span style="font-style: normal;"><span style="text-decoration: none;">Support
the decisions that she (or he)</span></span></span></span></b><span style="font-family: Tahoma,sans-serif;"><span style="font-size: small;"><span style="font-style: normal;"><span style="text-decoration: none;"><span style="font-weight: normal;">
is making within the </span></span></span></span></span><b><span style="font-family: Tahoma,sans-serif;"><span style="font-size: small;"><span style="font-style: normal;"><u>limitations</u></span></span></span></b><span style="font-family: Tahoma,sans-serif;"><span style="font-size: small;"><span style="font-style: normal;"><span style="text-decoration: none;"><span style="font-weight: normal;">
that s/he probably has to make them, whether it's one you would </span></span></span></span></span><b><span style="font-family: Tahoma,sans-serif;"><span style="font-size: small;"><i><span style="text-decoration: none;">make
for yourself or not.</span></i></span></span></b><br />
</li>
</ul>
<div style="font-style: normal; font-weight: normal; text-decoration: none;">
<br /><br />
</div>
<u><b><span style="font-family: Tahoma,sans-serif;"><span style="font-size: small;"><span style="font-style: normal;">Remember:</span></span></span></b></u><span style="font-family: Tahoma,sans-serif;"><span style="font-size: small;"><span style="font-style: normal;"><span style="text-decoration: none;"><span style="font-weight: normal;">
It's their body—their disease—and their future that they have
to keep in mind when weighing all the factors. You can say, for
example, “just have a nerve block.” Well, the RSD affects my
entire right leg. There are </span></span></span></span></span><b><u><span style="font-family: Tahoma,sans-serif;"><span style="font-size: small;"><i>hundreds
of sympathetic nerves</i></span></span></u></b><span style="font-family: Tahoma,sans-serif;"><span style="font-size: small;"><span style="font-style: normal;"><span style="font-weight: normal;"><u>.</u></span></span></span></span><span style="font-family: Tahoma,sans-serif;"><span style="font-size: small;"><span style="font-style: normal;"><span style="text-decoration: none;"><span style="font-weight: normal;">
Also, <b><i>for example</i></b>:</span></span></span></span></span><br />
<ul>
<li><div style="font-style: normal; font-weight: normal; text-decoration: none;">
<span style="font-family: Tahoma,sans-serif;"><span style="font-size: small;">I have a
manic/psychotic reaction to steroids, if they are used.</span></span></div>
</li>
<li><div style="font-style: normal; font-weight: normal; text-decoration: none;">
<span style="font-family: Tahoma,sans-serif;"><span style="font-size: small;">They have to hit
exactly the right nerve of hundreds of perhaps thousands of nerves</span></span></div>
</li>
<li><div style="font-style: normal; font-weight: normal; text-decoration: none;">
<span style="font-family: Tahoma,sans-serif;"><span style="font-size: small;">50% chance, if that,
that it will work</span></span></div>
</li>
<li><span style="font-family: Tahoma,sans-serif;"><span style="font-size: small;"><span style="font-style: normal;"><span style="text-decoration: none;"><span style="font-weight: normal;">If
the needle is inserted even </span></span></span></span></span><span style="font-family: Tahoma,sans-serif;"><span style="font-size: small;"><i><span style="text-decoration: none;"><b>slightly
improperly, </b></span></i></span></span><span style="font-family: Tahoma,sans-serif;"><span style="font-size: small;"><span style="font-style: normal;"><span style="text-decoration: none;"><span style="font-weight: normal;">I
could end up waking up with Stage IV, full-body RSD.</span></span></span></span></span><br />
</li>
<li><span style="font-family: Tahoma,sans-serif;"><span style="font-size: small;"><span style="font-style: normal;"><span style="text-decoration: none;"><span style="font-weight: normal;">I
have a </span></span></span></span></span><span style="font-family: Tahoma,sans-serif;"><span style="font-size: small;"><span style="font-style: normal;"><span style="text-decoration: none;"><b>severe
iodine allergy.....as in anaphylaxis....</b></span></span></span></span><br />
</li>
</ul>
<div style="font-style: normal; font-weight: normal; text-decoration: none;">
<br /><br />
</div>
<div style="font-style: normal; text-decoration: none;">
<span style="font-family: Tahoma,sans-serif;"><span style="font-size: small;"><b>I
am the one who has to live with the consequences......</b></span></span><span style="font-family: Tahoma,sans-serif;"><span style="font-size: small;">on the other hand.....</span></span>
</div>
<br />
<ul>
<li><b><span style="font-family: Tahoma,sans-serif;"><span style="font-size: small;"><span style="font-style: normal;"><span style="text-decoration: none;">It
could work, and I could find relief. </span></span></span></span></b></li>
<li><b><span style="font-family: Tahoma,sans-serif;"><span style="font-size: small;"><span style="font-style: normal;"><span style="text-decoration: none;"> </span></span></span></span></b><span style="font-family: Tahoma,sans-serif;"><span style="font-size: small;"><span style="font-style: normal;"><span style="text-decoration: none;"><span style="font-weight: normal;">No
garuntees. But relief would be nice. </span></span></span></span></span></li>
<li><span style="font-family: Tahoma,sans-serif;"><span style="font-size: small;"><span style="font-style: normal;"><span style="text-decoration: none;"><span style="font-weight: normal;">Just </span></span></span></span></span><b><span style="font-family: Tahoma,sans-serif;"><span style="font-size: small;"><i><span style="text-decoration: none;">please,
please, don't tell me what to do!!!</span></i></span></span></b></li>
</ul>
<br />
<br />
<span style="font-family: Tahoma,sans-serif;"><span style="font-size: small;"><span style="font-style: normal;"><span style="text-decoration: none;"><span style="font-weight: normal;">But
don't become an un-paid caregiver either: no one wins! If you find
yourself in this role, a gentle, but honest and firm conversation
about what you can/can't or will/won't do each week is best for both
parties. Don't leave until you're both clear on what you can/can't
do. </span></span></span></span></span><span style="font-family: Tahoma,sans-serif;"><span style="font-size: small;"><i><u><span style="font-weight: normal;">Stick
to your boundaries</span></u></i></span></span><span style="font-family: Tahoma,sans-serif;"><span style="font-size: small;"><span style="font-style: normal;"><span style="text-decoration: none;"><span style="font-weight: normal;">,
or you will end up resenting the relationship and will find yourself
dodging the other person, or “hating” them..........and yourself.</span></span></span></span></span><br />
<br /><br />
<br />
<span style="font-family: Tahoma,sans-serif;"><span style="font-size: small;"><span style="font-style: normal;"><span style="text-decoration: none;"><span style="font-weight: normal;">Be
honest. Be a friend. But if your friend ever offers to pay at the
movies or fast food, graciously accept and say”Thank you,” rather
than argue about how they can't afford it. It can hurt, and ruin
someone's long-awaited way of feeling like they are “finally giving
back.” When you are broke most of the time, it can feel good to
treat for a change, even if it sets you back!</span></span></span></span></span><br />
<span class="Apple-style-span" style="background-color: #cee8fb; color: black; font-family: AGaramondPro-Regular; font-size: 13px; font-style: normal; font-variant: normal; font-weight: normal; letter-spacing: normal; line-height: 18px; orphans: 2; text-align: left; text-indent: 0px; text-transform: none; white-space: normal; widows: 2; word-spacing: 0px;"><i><span style="font-family: Arial-ItalicMT; font-size: xx-small;"><span style="font-family: Arial-ItalicMT; font-size: xx-small;"></span></span></i></span>Unknownhttp://www.blogger.com/profile/17663204577997946867noreply@blogger.com1tag:blogger.com,1999:blog-3345296248176009885.post-76305791117616299592011-10-15T00:49:00.000-07:002011-10-15T00:49:16.986-07:00Things to Not to Say to Someone with Chronic Pain/Ways to Help Someone with CP<div style="text-align: center;">
<span style="font-size: large;">Some "Unhelpful" Things to (NOT) Say to Someone with RSD</span></div>
<span class="Apple-style-span" style="background-color: #cee8fb; font-family: AGaramondPro-Regular; font-size: 13px; font-style: normal; font-variant: normal; font-weight: normal; letter-spacing: normal; line-height: 18px; orphans: 2; text-align: left; text-indent: 0px; text-transform: none; white-space: normal; widows: 2; word-spacing: 0px;"><br /></span><br />
<ol>
<li>You can't be in that much pain!!! (the alternate version I got was; "You're too young to have had all this happen." Well, clearly I am not--dummy it's there in front of you, can we get down to business; and don't act like I am stupid, I am well educated, and I don't need any of your crap; RSD gives me plenty of that, thank you!")</li>
<li>No pain, no gain! (Uh, huh.....you done PT with RSD....when do I stop before creating damage, and when do I stop at the right time that I have benefited myself???? Oh, come on, you know--you are the one who sends me "RSD101" every morning!!!)</li>
<li>Stop being lazy and get a job. (My RSD doesn't take breaks, vacations, etc.....dealing with it is a full time job, thanks....)</li>
<li>Your illness is caused by stress. (Presently, it's the <i>confusion created when my mind has to override the body's basic desire to choke the daylights out of someone [presently, you] who so desperately deserves it!!!!</i>)</li>
<li>It's all in your head. (What's in my head is some very un-Christian thoughts about choking you, but I pity your ignorance instead.....and how insulting)</li>
<li>It's all in your head.... (<i>yeah, the confusion created when one's mind has to override the body's basic desire to choke the daylights out of someone [like you] who so desperately needs it!!!</i>)</li>
<li>You're just having a bad day... (actually this was me on a <i><b>good </b></i>day!)</li>
<li>This will pass....I had one neurologist tell me that basically RSD has been known to "go away over night" (Now, I know about remission, but this chick told me I'd go to bed one night, and wake up the next morning and not have RSD!!! Uh, someone get me that woman in seclusion and restraints--she's dangerous! :) )</li>
<li>Just get more exercise....(Yeah, gimme a power chair and we can do laps til the batteries are dead!!!)</li>
<li>But you look so good. (Compared to what?)</li>
<li>Hang in there (where? My closet upside down like a bat?)</li>
<li>Guess you'll have to learn how to live with this, won't you, then? {snide tone}</li>
<li>You'll just have to tough it out....(uh huh, right!!!)</li>
<li>Just pray harder. If you were a better Christian, you would be healed. (I will pray for you tonight...that the hoofprints of 1,000 chronic pain/chronically ill people don't find out where you live...seriously, that you could belittle anyone's suffering with such an ignorant statement, I hope you never end up with something like RSD....cancer.....and have a doctor tell you to just pray harder. Sure we pray for something, and for strength, or a good night's sleep; but you're sounding awfully judgemental....)</li>
<li>It can't be that bad.... ("Oh, it can feel that way....")</li>
<li>It could be worse.... (RSD can <i><b>get worse you blockhead!!!</b></i>)</li>
<li>It must be nice not to have to work.......(and watch my hard earned education go down the toilet, re-direct old clients, miss my work, miss the distraction, and know that though in work, I earn vacation, holidays, etc, my pain is there every minute of every hour of every day: no "smoke breaks," no lunch breaks even, and some days parts of my body are useless...a life-threatening emergency surgery could cause my RSD to go full body...I feel like I live constantly with my "deer in the headlights" look, like I am looking over my shoulder because it could save my life and change it forever; throwing me into full-body RSD: I've 2 close friends this has happened to. One was saved with ketamine coma, the other lives in constant misery.</li>
<li>There are people who are worse off than you are....You think I don't know that--that my constant fear isn't that my "treatment" will turn on me? That I don't fear I will become one?</li>
</ol>
So, yes, the RSD101 is archaic--although well meaninng<br />
<br />
<br />
And my life has changed: if you ever stopped in for a <i><b>real listen</b></i>....you would know.<br />
<br />
<br />
(c) 2011 JJC<br />
<span class="Apple-style-span" style="background-color: #cee8fb; color: black; font-family: AGaramondPro-Regular; font-size: 13px; font-style: normal; font-variant: normal; font-weight: normal; letter-spacing: normal; line-height: 18px; orphans: 2; text-align: left; text-indent: 0px; text-transform: none; white-space: normal; widows: 2; word-spacing: 0px;"><div align="left">
<br /></div>
</span>Unknownhttp://www.blogger.com/profile/17663204577997946867noreply@blogger.com0tag:blogger.com,1999:blog-3345296248176009885.post-22613822037197581482011-10-11T19:10:00.000-07:002011-10-11T19:10:34.257-07:00DELETE the "Peanut Gallery"<div style="text-align: center;">
<span style="font-family: Verdana,sans-serif;">Burning, firey, hellish pain</span></div>
<div style="text-align: center;">
<span style="font-family: Verdana,sans-serif;">endured day after day;</span></div>
<div style="text-align: center;">
<span style="font-family: Verdana,sans-serif;">It comes into existence when</span></div>
<div style="text-align: center;">
<span style="font-family: Verdana,sans-serif;">least expected, and is here to stay;</span></div>
<div style="text-align: center;">
<span style="font-family: Verdana,sans-serif;"> </span></div>
<div style="text-align: center;">
<span style="font-family: Verdana,sans-serif;">It will abide, continue, endure, last, remain, and stay,</span></div>
<div style="text-align: center;">
<span style="font-family: Verdana,sans-serif;">just when you think you can't take another step;</span></div>
<div style="text-align: center;">
<span style="font-family: Verdana,sans-serif;">the RSD tells you "NO!"</span></div>
<div style="text-align: center;">
<span style="font-family: Verdana,sans-serif;">Some stubborn, if not childish bore</span></div>
<div style="text-align: center;">
<span style="font-family: Verdana,sans-serif;">in your head says,</span></div>
<div style="text-align: center;">
<span style="font-family: Verdana,sans-serif;">"I'm gonna give you the finger,</span></div>
<div style="text-align: center;">
<span style="font-family: Verdana,sans-serif;">and I might pay tomorrow,</span></div>
<div style="text-align: center;">
<span style="font-family: Verdana,sans-serif;">But YOU will NOT have the last word, step, stitch, or whatever.</span></div>
<div style="text-align: center;">
<span style="font-family: Verdana,sans-serif;"> </span></div>
<div style="text-align: center;">
<span style="font-family: Verdana,sans-serif;">The next day you are in bed,</span></div>
<div style="text-align: center;">
<span style="font-family: Verdana,sans-serif;">hating yourself, cursing your own stubbornness,</span></div>
<div style="text-align: center;">
<span style="font-family: Verdana,sans-serif;">asking why did you have to be such a fool?</span></div>
<div style="text-align: center;">
<span style="font-family: Verdana,sans-serif;"> </span></div>
<div style="text-align: center;">
<span style="font-family: Verdana,sans-serif;">It wasn't foolishness you sought.</span></div>
<div style="text-align: center;">
<span style="font-family: Verdana,sans-serif;">It was normalcy.</span></div>
<div style="text-align: center;">
<span style="font-family: Verdana,sans-serif;">No pills by the bucketload....</span></div>
<div style="text-align: center;">
<span style="font-family: Verdana,sans-serif;">no "experimental procedures,"</span></div>
<div style="text-align: center;">
<span style="font-family: Verdana,sans-serif;">that could kill you, cure you, disable you for life,</span></div>
<div style="text-align: center;">
<span style="font-family: Verdana,sans-serif;">cause a spread, cause it to worsen.</span></div>
<div style="text-align: center;">
<span style="font-family: Verdana,sans-serif;"> </span></div>
<div style="text-align: center;">
<span style="font-family: Verdana,sans-serif;">But all these "RSD101" articles in your email</span></div>
<div style="text-align: center;">
<span style="font-family: Verdana,sans-serif;">almost on a daily basis when you think, </span></div>
<div style="text-align: center;">
<span style="font-family: Verdana,sans-serif;">"Uh, former nurse-think I might have done some of my own?"</span></div>
<div style="text-align: center;">
<span style="font-family: Verdana,sans-serif;">Or that my <b>specialist</b> might have caught it</span></div>
<div style="text-align: center;">
<span style="font-family: Verdana,sans-serif;">ten or twelve years ago </span></div>
<div style="text-align: center;">
<span style="font-family: Verdana,sans-serif;">when it was first written..</span></div>
<div style="text-align: center;">
<span style="font-family: Verdana,sans-serif;"><br /></span></div>
<div style="text-align: center;">
<span style="font-family: Verdana,sans-serif;">You sigh, and hit that well used button...</span></div>
<div style="text-align: center;">
<span style="font-family: Verdana,sans-serif;"><br /></span></div>
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEilLsL-CS_t0sAG_3E8i2NAgENLMkLMwMXIr_qT3Gt0Bx2QeVJmtnO_M7JDkNHD8ydY4pcFhErdxLUtcvHuQx0UgrHHmZqqwICpnRXmnmRpGdOKtHu9U_38l6puDus9qT1qQMnaUgTvEM0/s1600/delete_button.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEilLsL-CS_t0sAG_3E8i2NAgENLMkLMwMXIr_qT3Gt0Bx2QeVJmtnO_M7JDkNHD8ydY4pcFhErdxLUtcvHuQx0UgrHHmZqqwICpnRXmnmRpGdOKtHu9U_38l6puDus9qT1qQMnaUgTvEM0/s1600/delete_button.jpg" /></a></div>
<div style="text-align: center;">
<span style="font-family: Verdana,sans-serif;"><br /></span></div>
<br />Unknownhttp://www.blogger.com/profile/17663204577997946867noreply@blogger.com0tag:blogger.com,1999:blog-3345296248176009885.post-46656639148082211372011-10-04T21:36:00.000-07:002011-10-04T21:36:14.654-07:00Laura Black: CRPS<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj-kNVa-Xq0Q3wRztyL39Uc6j2pW7vCFvYDScw4RCx_op7Iq-MTePR0db-QuSagV0lw7HF_DhMRhdRBKwE4vMeap82sEn9yhBSLvv2ZaQgHD1Mk1BwApnxX_Si8_yzCoVjx5XRBj6cFJnQ/s1600/Laura.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj-kNVa-Xq0Q3wRztyL39Uc6j2pW7vCFvYDScw4RCx_op7Iq-MTePR0db-QuSagV0lw7HF_DhMRhdRBKwE4vMeap82sEn9yhBSLvv2ZaQgHD1Mk1BwApnxX_Si8_yzCoVjx5XRBj6cFJnQ/s1600/Laura.jpg" /></a></div>
<span style="font-family: Verdana, sans-serif;">This girl has been beaten down by pain: <em>I won't go down like that!!!!</em></span><br />
<br />
<span style="font-family: Verdana;">But our stories are way different!</span><br />
<br />
<br />
<a href="http://www.abc.net.au/catalyst/stories/2621515.htm"><span style="font-family: Verdana, sans-serif;">http://www.abc.net.au/catalyst/stories/2621515.htm</span></a><br />
Unknownhttp://www.blogger.com/profile/17663204577997946867noreply@blogger.com0tag:blogger.com,1999:blog-3345296248176009885.post-10261744631941094412011-10-04T08:41:00.000-07:002011-10-04T08:41:37.868-07:00RSD-Another Video-The Unwelcome Visitor<div class="separator" style="clear: both; text-align: center;">
<br /></div>
<div class="separator" style="clear: both; text-align: center;">
<iframe allowfullscreen='allowfullscreen' webkitallowfullscreen='webkitallowfullscreen' mozallowfullscreen='mozallowfullscreen' width='320' height='266' src='https://www.blogger.com/video.g?token=AD6v5dzrxqtuptgWQX3kOsHk6duPAYawAPdGinOe9rEXNO5MUFZAtHwoF4dBMN6d6GvgPHBaTy26qkYuS30w78mkUQ' class='b-hbp-video b-uploaded' frameborder='0'></iframe></div>
<div align="center">
<br /></div>
<div align="center">
<span style="font-family: Verdana, sans-serif; font-size: x-small;">Originally posted</span></div>
<div align="center">
<span style="font-family: Verdana, sans-serif;"><span style="font-size: x-small;"><span class="date">~August 15, 2011~</span></span>You are my unwelcome visitor,<br />Like
a party guest who won't leave<br />Only you are so much worse<br />You come in and
in one stroke,<br />Cause so much suffering, so much agony,<br />So much heartache,
so much damage...<br />Living with you every day is a living hell.<br /><br />No one
wants you around,<br />The life I do have you are miserable.<br />A
torturous, living, nightmarish living hell.<br /><br />You stalk your victim like a
wolf stalks its prey.<br />But at least the prey knows where to hide.<br />You are
with me every minute<br />Of every hour<br />Of every day.<br />Now diagnosed with
RSD, <br />I know you're not going away...<br /><br />Going to hell is where you
belong,<br />I want you to leave me alone dammit!<br />I deserve a LIFE!!!<br />You
feed on people,<br />their negative feelings,<br />and that is how you
survive,<br />how you grow and how you thrive!<br /><br />You are worse than a
parasite,<br />but smaller than a tick.<br />No one can see you,<br />Until you have
deccimated their lives......<br />You are the perpetual thief,<br />You take
everything away from someone,<br />Life, freedom, and a sense of peace...<br />You
have solen my selse of well-being,<br />My ability to even so much <br />as get a
peaceful slumber<br />It feels like I am forever your prisoner<br />Your servant and
your slave.<br /><br />I used to love and enjoy my life.<br />I was happy, satisfied,
productive, and free.<br />You have stolen it all from me.<br /><br />And with "malice
and forethoughought" <br />as the CJS says<br />Like the murderer you are!<br />Oh,
don't you remember Eric? <br />The tears his mother still weeps?<br />The memories
of him we all have.<br />Eric before the pain and RSD.<br />Eric after the pain and
RSD.<br />A different man. And different FATHER.<br />You crush a person's sense of
hope<br />You steal their spirit. Their zest for life.<br />Their desire to live,
and hope that something will help..<br />Eric drove away his wife; she divorced
him;<br />begged him to come and see his girls<br />He refused, didn't want them to
"see him that way."<br />He drove away his friends, <br />leaving him with only
one,<br />who's help he also refused.<br /><br />I could let myself fall into your
deadly grasp.<br />Think that if I had to stay in that life<br />for the next 20
year, 40 years,<br />However long I might have, that, <br />Well, I might well put a
bullet in my brain now<br />Because what you have stolen is hope.<br /><br />But you
can't have mine.<br />If I have to close my eyes and talk out loud to Him<br />I
will, I will not, however, let you steal the ONE thing<br />that has gotten me
through the medical HELL I have <br />been through...the MRSA, the sepsis from
it,<br />The bowel resection from gangrenous bowel,<br />the poison that floated
through my blood both times.<br />Both times I lay in the ICU, my temperature
higher<br />than I care to think about.<br />and the damage it did too my
body.<br /><br />But I survived BOTH TIMES.<br /><br />And although it's been longer
than I've showered<br />than I care to think about, I won't let this<br />defeat me,
I won't let let this beat me.<br />Though it feels like my <br />skin is being
burned off<br />as soon as water of <br />ANY temperature (cold, tepid, or
hot),<br />I will grit my teeth and get through it.<br /><br />Because I do not allow
in <br />an Unwelcome visitor.<br /><br />Go away, get out, <br />you are not welcome
here.<br /><br />I have two huge Rottweilers<br />that can make it to the
fence</span><span style="color: #ff2600;"><b><span style="font-family: Verdana, sans-serif;">in under 4 seconds......</span></b></span></div>
<div align="center">
<span style="color: #ff2600;"><span style="color: #0533ff;"><span style="font-family: Verdana, sans-serif;">the last dummy who tried to beat them<br />got 55
stitches.<br /><br /><i><span style="color: #ff2600;"><b>How fast can YOU
run???</b></span></i></span></span></span><br /></div>
Unknownhttp://www.blogger.com/profile/17663204577997946867noreply@blogger.com0tag:blogger.com,1999:blog-3345296248176009885.post-69667961580021397082011-10-03T17:36:00.000-07:002011-10-03T17:36:04.094-07:00Bipolar and in pain...Take Some Ally for relief!!!<span style="font-family: Verdana, sans-serif; font-size: x-small;">September 19, 2011</span><br />
<br />
<span style="font-family: Verdana;">You have no credibility...</span><br /><span style="font-family: Verdana;">None whatsoever...when the average
person</span><br /><span style="font-family: Verdana;">tells their doctor they're
in pain,</span><br /><span style="font-family: Verdana;">they're taken at face
value.....</span><br /><span style="font-family: Verdana;">It's assumed they really
<em>are in pain</em>.....</span><br /><span style="font-family: Verdana;">But I
have "bipolar" so God knows</span><br /><span style="font-family: Verdana;">I
couldn't <strong><em>possibly </em></strong>be in pain....</span><br /><span style="font-family: Verdana;">Couldn't possibly be sick if I said I
was...</span><br /><span style="font-family: Verdana;">Because I am not to be
believed....</span><br /><span style="font-family: Verdana;">Always order a "psych
eval" first,</span><br /><span style="font-family: Verdana;">make sure I am telling
the truth.</span><br /><span style="font-family: Verdana;"></span><br /><span style="font-family: Verdana;">Let me tell you a story...one of my
life...</span><br /><span style="font-family: Verdana;">I was sick as a dog...in
pain and throwing up...</span><br /><span style="font-family: Verdana;">No doctor
would so much as "take a picture" </span><br /><span style="font-family: Verdana;">of my abdomen; see what might be going
on;</span><br /><span style="font-family: Verdana;">I'd not seen any of the
psychiatrists within</span><br /><span style="font-family: Verdana;">the
"world-class" teaching hospital by my house</span><br /><span style="font-family: Verdana;">I kept banging my head on the wall with
them...</span><br /><br /><span style="font-family: Verdana;">Til one day when I
wised up....and I'll tell you why.</span><br /><span style="font-family: Verdana;">I got a look at my chart, and saw what
they</span><br /><span style="font-family: Verdana;">had decided was wrong with
me;</span><br /><span style="font-family: Verdana;">They would needle me for blood
on nearly a daily basis,</span><br /><span style="font-family: Verdana;">But I am
certain to say now that they probably</span><br /><span style="font-family: Verdana;">simply threw it in the trash, if they'd run
it;</span><br /><span style="font-family: Verdana;">even done a CBC, they'd have
seen I was critically ill.</span><br /><span style="font-family: Verdana;">But no,
I am bipolar, so in my chart,</span><br /><span style="font-family: Verdana;">my
primary diagnosis of course is bipolar,</span><br /><span style="font-family: Verdana;">underneath which, a third year, untrained med
student</span><br /><span style="font-family: Verdana;">scrawled in his pen
"Munchausen Syndrome."</span><br /><span style="font-family: Verdana;">It was not
confirmed by faculty,</span><br /><span style="font-family: Verdana;">but treated
like "holy grail."</span><br /><span style="font-family: Verdana;">The work was
done...by a kid who's braces had</span><br /><span style="font-family: Verdana;">only just come off, unless using
Invisilign....</span><br /><span style="font-family: Verdana;">Forgive my sarcasm,
it nearly cost me my life...</span><br /><span style="font-family: Verdana;"></span><br /><span style="font-family: Verdana;">I
caught on and finally landed in the lap, thank God,</span><br /><span style="font-family: Verdana;">of a talented surgeon, and one who also trusted his
gut</span><br /><span style="font-family: Verdana;">ironically enough...and I had
not one but two</span><br /><span style="font-family: Verdana;">primary
tumors...one in the reteroperitroneal cavity,</span><br /><span style="font-family: Verdana;">and on went my eighteen month gig with
chemo,</span><br /><span style="font-family: Verdana;">and the horrors that go with
it.......</span><br /><span style="font-family: Verdana;"></span><br /><span style="font-family: Verdana;">I pray for Ally, </span><br /><span style="font-family: Verdana;">her story touches so close to
home....</span><br /><span style="font-family: Verdana;">I dedicate this to
her....</span><br /><span style="font-family: Verdana;">I forgive those people at
the hospital,</span><br /><span style="font-family: Verdana;">that's the type of
person she is....</span><br /><span style="font-family: Verdana;">she's the
inspiration for this</span><br /><span style="font-family: Verdana;"></span><br /><span style="font-family: Verdana;">Too
weak for the chemo for a bone marrow,</span><br /><span style="font-family: Verdana;">my son's stem cells were infused into
me</span><br /><span style="font-family: Verdana;">in hopes of stimulating normal
growth of cells...</span><br /><span style="font-family: Verdana;"></span><br /><span style="font-family: Verdana;">July 4, 2011 was my Independence
Day;</span><br /><span style="font-family: Verdana;">My 3rd birthday from having
cancerous cells in my body...</span><br /><span style="font-family: Verdana;">I am
free of cancer</span><br /><span style="font-family: Verdana;">I am free of
resentment and anger</span><br /><span style="font-family: Verdana;"></span><br /><span style="font-family: Verdana;">Thank
you, Ally!</span>Unknownhttp://www.blogger.com/profile/17663204577997946867noreply@blogger.com0tag:blogger.com,1999:blog-3345296248176009885.post-44855199725960190762011-10-03T10:12:00.000-07:002011-10-06T12:02:31.352-07:00Hurt By the Fam...AGAIN--Shame on ME!!!!!!<span style="font-family: Verdana, sans-serif;">You hear the phrase "Once-shame on them, twice-shame on them, <strong><em>three times-</em><em><u>shame on you</u></em></strong>!!!!!"</span><br />
<br />
<span style="font-family: Verdana;">Shame on me for trusting the wrong people; and shame on me for thinking that a conversation would stay private.</span><br />
<br />
<span style="font-family: Verdana;">Shame on me for someone taking me at my word; and remembering that RSD has no cure, only treatment, only hope and prayers that thingsss will improve. Shame on me for thinking that my family would remember that <strong><em>I don't sleep </em>well; <em>and sometime for days at a time!!!</em></strong></span><br />
<br />
<strong><u><span style="font-family: Verdana;">Shame on me for believing that any member of my family could believe my pain is actually real!</span></u></strong><br />
<br />
<span style="font-family: Verdana;">Shame on me for trusting any of them at any point in time.</span><br />
<br />
<span style="font-family: Verdana;">They deserve what they get; they'll get what's coming to them; of that I must have faith!!!!!</span><br />
<br />
<span style="font-family: Verdana;">I want to say I hate the whole lot of thhhem, but I don't. I just hope they don't ever get something like RSD.......</span><br />
<br />
<span style="font-family: Verdana;">I pity them, feel sorry for them, and pray for them... but I am about, except Lisa, surprisingly, to cut the whole lot of them off--they're about to drive me nuts with the hypocrisy.</span><br />
<span style="font-family: Verdana;">I can't trust my brother to go running to my mother...who makes my life hell now that she's retired and got nothing else to do; and I want to scream; I wasn't 100% sure I could trust him, and now I amm 1000% sure I can't. And it hurts--my big bro is supposed to protect me, watch out for me, and and I should be able to trust him....</span><br />
<br />
<span style="font-family: Verdana;">But my heart hurts, feels broken in two that I can't tell him something, without it making it's way to her hurtful, angry, horror--stricken heart...her heart is so cold, like ice...</span><br />
<br />
<br />
<span style="font-family: Verdana;">It's so sad; someone had to have hurt her bad to make her this way.....</span><br />
<br />
<span style="font-family: Verdana;">But shame on me for trusting her hurtful heart....her angry, hateful, borderline, narcissistic heart...it is what it is.</span><br />
<br /><span style="font-family: Verdana;">I know better next time.</span><br />
<span style="font-family: Verdana;"></span>Unknownhttp://www.blogger.com/profile/17663204577997946867noreply@blogger.com0tag:blogger.com,1999:blog-3345296248176009885.post-25962352609534349232011-10-03T08:39:00.000-07:002011-10-03T08:39:30.749-07:00My Resolutions for RSD today<span style="font-family: Verdana, sans-serif;">I have RSD. Here's my resolutions:</span><br />
<br />
<ol>
<li><span style="font-family: Verdana;">I am going to do laundry no matter how my leg burn or sweats.</span></li>
<li><span style="font-family: Verdana;">I am going to do something enjoyable, no matter how bad the pain.</span></li>
<li><span style="font-family: Verdana;">It's the day after my 37th birthday; I might catch up on som sleep, if I can.</span></li>
<li><span style="font-family: Verdana;">Today I will make a video.</span></li>
</ol>
<br />
<br />
<div class="separator" style="clear: both; text-align: center;">
<iframe allowfullscreen='allowfullscreen' webkitallowfullscreen='webkitallowfullscreen' mozallowfullscreen='mozallowfullscreen' width='320' height='266' src='https://www.blogger.com/video.g?token=AD6v5dx3KMTffdv4sM_NtaA-x7ZcwBVGGt9JIG02m7zYqt_Am9WUrr_wTHqA8aJo8TsB9teVnorQjIYGgLc0GyPaGg' class='b-hbp-video b-uploaded' frameborder='0'></iframe></div>
<span style="font-family: Verdana, sans-serif;">My RSD Tribute!</span>Unknownhttp://www.blogger.com/profile/17663204577997946867noreply@blogger.com0tag:blogger.com,1999:blog-3345296248176009885.post-40659664940896134162011-10-02T21:25:00.000-07:002011-10-02T21:25:44.743-07:00The Things You Take for Granted<span style="font-family: Verdana, sans-serif;">To the "normie,"</span><br />
<br />
<span style="font-family: Verdana;">There are so many things you take for granted. Don't beat yourself up, I once did too. Keeping food down without medication that makes you slur your words like a drunk.</span><br />
<br />
<span style="font-family: Verdana;">Chronic infections. Being even <em>able to eat </em>without medication at all. Let alone medication that makes you talk, look, feel, and act stupid........</span><br />
<br />
<span style="font-family: Verdana;">Exhaustion at a level you never knew before, you take medications that slow the nerve impulses, and they make you feel, look, and act drunk.....</span><span style="font-family: Verdana;">You are accussed of being and talking and acting drunk....you are abusing drugs, you are doing something you shouldn't be.....Everyone is suspect, everyone is giving you a "psychiatric diagnosis."</span><br />
<br />
<span style="font-family: Verdana;">It's funny; the specialists--right down to a damned dermatologist (and <em>really-</em>who would sit and aspire to be a <em>dermatologist</em>?????? At least a plastic surgeon and treat burn patients, do something <em>useful</em>, rather than rashes that can be cured with Gold Bond and mouthwash....) get an ego about it if you ask a question; even explaining that youwere a nurse in another lifetime.......</span><br />
<br />
<span style="font-family: Verdana;">But they can throw something as damaging as "Chronic Pain Syndrome," which <em>sounds </em>benign enough:</span><br />
<br />
<a href="http://emedicine.medscape.com/article/310834-overview"><span style="font-family: Verdana, sans-serif;">http://emedicine.medscape.com/article/310834-overview</span></a><br />
<a href="http://emedicine.medscape.com/article/310834-overview#a0104"><span style="font-family: Verdana, sans-serif;">http://emedicine.medscape.com/article/310834-overview#a0104</span></a><br />
<br />
<span style="font-family: Verdana, sans-serif;">So now you're a head case. Why not come right out and say "Munchausen Syndrome" which I was diagnosed with when what was the correct diagnosis?</span><br />
<br />
<span style="font-family: Verdana;">Cancer. To be correct, Stage 2 non-Hodgkin's Lymphoma.</span><br />
<br />
<span style="font-family: Verdana;">By an <strong><em>unsupervised third year medical student</em></strong>, and no faculty or resident signed off on it, but it went down as a "primary diagnosis. </span><br />
<br />
<span style="font-family: Verdana;">Cute.</span><br />
<br />
<span style="font-family: Verdana;">But to forgive and let go is to find freedom. To hang onto resentments annd anger serves only to burden the soul...and bring more pain.</span><br />
<br />
<span style="font-family: Verdana;">Got enough in that department. But make sure CPS ain't on your file, or you're screwed...marked for life...just like any patient with CP who are on "those meds" are always encouraged to find a way to get off.</span><br />
<br />
<span style="font-family: Verdana;">I'm entitled to life, same as you. Whatever it takes, it takes. But no one gets to label me except my Creator.</span><br />
<br />
<br />
<span style="font-family: Verdana;">J</span><br />
<br />
<span style="font-family: Verdana;">Sleep, unassisted.</span>Unknownhttp://www.blogger.com/profile/17663204577997946867noreply@blogger.com0tag:blogger.com,1999:blog-3345296248176009885.post-3976286344485428032011-10-02T13:27:00.000-07:002011-10-02T13:27:19.115-07:00SELF-APPOINTED MODERATORS<span><span style="color: #222222; font-size: x-small;">Sunday, September 25, 2011</span></span> <div class="date-posts">
<div class="post-outer">
<div class="post hentry">
<div class="post-body entry-content" id="post-body-1311788990351641901">
<div align="left">
<span style="font-family: Verdana;"><span style="font-size: x-small;"></span></span> </div>
<div align="left">
<span style="font-family: Verdana;"><span style="font-size: x-small;">You know, it seems we have some self-appointed people
here who are decideding they have nothing to do with your time rather than stand
in pass judgement on the rest of us.</span></span></div>
<div align="left">
<span style="font-family: Verdana;"><span style="font-size: x-small;">To decide who it's okay for some of us to be "friends"
with and who it's not. To put up very telling comments on articles .....Telling
about YOU, not the author....Grow up, </span></span><em><span style="font-family: Verdana;"><span style="font-size: x-small;">girls.</span></span></em></div>
<br /><span style="font-family: Verdana;"><span style="font-size: x-small;">For those of you who
don't like an article, or hate the author....</span></span><strong><span style="font-family: Verdana;"><span style="font-size: x-small;">don't read
it!!!</span></span></strong><br />
<div align="left">
<span style="font-family: Verdana;"><span style="font-size: x-small;">You blame me for making this community what it is...if
it's a look in the trash can, rather than perhaps a look in the mirror is in
order.....</span></span></div>
<div align="left">
<span style="font-family: Verdana;"><span style="font-size: x-small;">This </span></span><span style="font-family: Verdana;"><span style="font-size: x-small;"><b>was once upon a
time a "support network," </b></span></span><span style="font-family: Verdana;"><span style="font-size: x-small;"><i>but a few,
</i></span></span><strong><span style="font-family: Verdana;"><span style="font-size: x-small;"><i>immature, self-appointed
mediators</i></span></span></strong><span style="font-family: Verdana;"><span style="font-size: x-small;"><i> have turned it into a place where no one knows who
to trust, where no one knows who they are "allowed" to be friends with, and are
deccimating their lists because you--you know </i></span></span><strong><span style="font-family: Verdana;"><span style="font-size: x-small;"><i>exactly
</i></span></span></strong><span style="font-family: Verdana;"><span style="font-size: x-small;"><i>who you are--have taken it upon yourselves to decide
what this site and what is not.</i></span></span></div>
<div align="left">
<span style="font-family: Verdana;"><span style="font-size: x-small;">People don't want to hang out here
anymore~~you drove them away = congrats on that one!</span></span></div>
<div align="left">
<span style="font-family: Verdana;"><span style="font-size: x-small;"></span></span> </div>
<div align="left">
<span style="font-family: Verdana;"><span style="font-size: x-small;">It's become a stressor, not a helper, no longer a
support. You have your cliquish little communities, and perfectly innocent
people are falling victim to your nastiness, falling victim to your hideous
games. People have specifically told me that you are setting "the fear of God"
into them just about, and that was why I was removed from their friends'
list-->they no longer knew I had anything to do with w=a ! Not because of
me!!! Or anything I have done....</span></span></div>
<div align="left">
<span style="font-family: Verdana;"><span style="font-size: x-small;"></span></span> </div>
<div align="left">
<span style="font-family: Verdana;"><span style="font-size: x-small;">I used to enjoy site messages. Then grew to dread them
and never know what friends are going to say to me because of something fed to
them by 2 nasty old bitties with nothing better to do would have to say or
doll</span></span></div>
<div align="left">
</div>
<div align="left">
<br /><span style="font-family: Verdana;"><span style="font-size: x-small;"><b>A word of advice:</b></span></span></div>
<div align="left">
<span style="font-family: Verdana;"><span style="font-size: x-small;">Get a cat~if it would put up with you and not pee on
the floor, in your houseplants, or <i><b>on you.</b></i></span></span></div>
<div align="left">
<span style="font-family: Verdana;"><span style="font-size: x-small;">Buy a <i><b>houseplant</b></i><span style="font-style: normal;"><span style="font-weight: normal;"> if you can keep it
alive.....or the cat doesn't pee on it....</span></span></span></span></div>
<span style="font-family: Verdana;"><span style="font-size: x-small;">Get that thing
called a life <i><b>unless you've chased everyone else
away</b></i>.</span></span><br />
<div align="left">
<span style="font-family: Verdana;"><span style="font-size: x-small;">Then get on the computer and tell people what to do with their lives--but only if the cat and the plant are still alive in 3 years!</span></span></div>
<div align="left">
<span style="font-family: Verdana;"><span style="font-size: x-small;"></span></span> </div>
<div align="left">
<span style="font-family: Verdana;"><span style="font-size: x-small;"></span></span> </div>
<div align="left">
<span style="font-family: Verdana;"><span style="font-size: x-small;">I'm grateful to say I have friends beyond this place,
despite what you think of me or not...My page was private, yet someone who
should have no access seems to know I am finding "healing in my journals." How
would you know unless you have people doing your dirty work you aren't
<i><b>woman</b></i> enough to do yourself.</span></span></div>
<div align="left">
<span style="font-family: Verdana;"><span style="font-size: x-small;">And V2, for someone who said they swore off leaving me
alone, you have a lot to say about what a write in my own thoughts; and in my
articles. I'd hardly call that leaving me alone.</span></span></div>
<div align="left">
<span style="font-family: Verdana;"><span style="font-size: x-small;">So I leave YOU--go 404 as they say by choice and at
peace with it; I got a nice gift from my brother, and so much from my friends.
Much to look forward to with my family and my doctors and this thing called
hope.</span></span></div>
<div align="left">
<span style="font-family: Verdana;"><span style="font-size: x-small;">But no thanks to you.</span></span></div>
<div align="left">
<span style="font-family: Verdana;"><span style="font-size: x-small;">I found it inside myself.</span></span></div>
<div align="left">
<span style="font-family: Verdana;"><span style="font-size: x-small;">P4P is not the only “support site” out there; and to
think so would be arrogance typical of the main self-appointed moderators that
have turned this formerly decent site into warring factions where people are
apparently afraid to even have certain people listed on their
</span></span>“<span style="font-family: Verdana;"><span style="font-size: x-small;">friend's” list, rather than deal with the 'fallout' of
exercising their right to what is listed in the Bill of Rights as “The <span style="font-family: Verdana, sans-serif;">Right to Free
Speech-</span></span></span><span style="font-family: Verdana, sans-serif;"><span style="font-size: x-small;"><i>on a website where I am supposed to at least be
</i></span><span style="font-size: x-small;"><i>able to speak my
mind!!!!"</i></span></span></div>
<div align="left">
<br /><span style="font-family: Verdana;"><span style="font-size: x-small;">If we think P4P is the only “support site....” it would
be like saying we are the only ones who have RSD/CRPS if
our...</span></span></div>
<div align="left">
<span style="font-family: Verdana;"><span style="font-size: x-small;">But in terms of that, the arrogance of the
two-facedness in the <span style="font-family: Times New Roman;"><i>infants
</i></span>who are so publicly cat-fighting are only dragging P4P down with
themselves and through the mud, while claiming to “love this site.” If they did,
they would go 404 and <i><b>never </b></i><span style="font-style: normal;"><span style="font-weight: normal;">return.</span></span>..that is the only way to make
it look better now.</span></span></div>
<div align="left">
<span style="font-family: Verdana;"><span style="font-size: x-small;">I left because of fever-pitch of drama...and my health
couldn't take it!</span></span></div>
<div align="left">
<span style="font-family: Verdana;"><span style="font-size: x-small;">But it has caused me to realize these sites are a dime
a dozen, much all the same.</span></span></div>
<div align="left">
<span style="font-family: Verdana;"><span style="font-size: x-small;">Personality Disordered, and drama run rampant, and the
people I grew up made my life hell.</span></span></div>
<div align="left">
<span style="font-family: Verdana;"><span style="font-size: x-small;">Not responding drives them crazy. That is how I respond
now; and it drives them over the moon......and when you've got their number,
that too, also makes them more insane than they already
are.....</span></span></div>
<div align="left">
<span style="font-family: Verdana;"><span style="font-size: x-small;">When the drama presents itself—and that is what these
two are up to with practically sitting at the computer, posting to make everyone
up in a tizzy with their stupid posts. Then, not being woman enough to leave up
the original post that made the whole problem in the first place, and pulling
them down—that's right, not <span style="font-family: Verdana, sans-serif;"><i><b>woman
enough!!!</b></i></span></span></span></div>
<div align="left">
<span style="font-family: Verdana;"><span style="font-size: x-small;">Not responding drives them crazy. That is how I respond
now; and it drives them over the moon......and when you've got their number,
that too, also makes them more insane than they already
are.....</span></span></div>
<div align="left">
<span style="font-family: Verdana;"><span style="font-size: x-small;">When the drama presents itself—and that is what these
two are up to with practically sitting at the computer, posting to make everyone
up in a tizzy with their stupid posts. Then, not being woman enough to leave up
the original post that made the whole problem in the
first.</span></span></div>
<div align="left">
<span style="font-family: Verdana;"><span style="font-size: x-small;">place, and pulling them down—that's right, not <span style="font-family: Verdana, sans-serif;"><i><b>woman
enough!!!</b></i></span></span></span></div>
<div align="left">
<span style="font-family: Verdana;"><span style="font-size: x-small;"><b>Girls</b>, you are in the “big girls” sandbox,
whether or not you deserve to be. Grow up and act like you at least belong
there.</span></span></div>
<div align="left">
<span style="font-family: Verdana;"><span style="font-size: x-small;"></span></span> </div>
<div align="left">
<span style="font-family: Verdana;"><span style="font-size: x-small;">Don't worry about me coming back under “Jenna McK” or
any name; I am adult enough to come back for any of this stupid backbiting and
stupid childish games—why would I open <span style="font-family: Verdana-BoldItalic;"><i><b>another account
</b></i></span>here—let alone under <span style="font-family: Verdana-BoldItalic;"><i><b>multiple accounts
</b></i></span>as some have done—despite your crap, I have managed to make a few
friends along the way.</span></span></div>
<div align="left">
<span style="font-family: Verdana;"><span style="font-size: x-small;"></span></span> </div>
<div align="left">
<span style="font-family: Verdana;"><span style="font-size: x-small;">Let us be clear on one thing; no-make that two: I did
not go “404” because anything you have done—save the volume of drama; you
certainly don't deserve credit for that; my 404 is because I have not got the time--I am actually <strong><em>sick</em></strong>--to write about every burp and fart that comes out...this alone has taken several tries to write, and damned near all day!!! You have all the time and good health to make everyone's live hell!!!</span></span></div>
<div align="left">
<span style="font-family: Verdana;"><span style="font-size: x-small;"></span></span> </div>
<div align="left">
<span style="font-family: Verdana;"><span style="font-size: x-small;">But wait and be clear on this: </span></span><span style="font-family: Verdana;"><span style="font-size: x-small;">You need to get some help~right quick before you or
someone else gets hurt:</span></span></div>
<span style="font-family: Verdana;"><span style="font-size: x-small;">physically or
emotionionally........</span></span><br />
<div align="left">
<span style="font-family: Verdana;"><span style="font-size: x-small;">Personality disorders are to be taken
seriously:</span></span></div>
<div align="left">
<strong><u></u></strong> </div>
<div align="left">
<strong><u> <span style="font-family: Verdana;"><span style="font-size: x-small;">Cluster B Personality
Disorders</span></span></u></strong></div>
<div align="left">
<span style="font-family: Verdana, sans-serif;"><span style="font-size: x-small;"><b></b></span></span> </div>
<div align="left">
<span style="font-family: Verdana, sans-serif;"><span style="font-size: x-small;"><b>Antisocial Personality Disorder
</b></span></span><span style="font-family: Verdana, sans-serif;"><span style="font-size: x-small;">is more commonly </span></span><span style="font-family: Verdana, sans-serif;"><span style="font-size: x-small;"><i>diagnosed </i></span></span><span style="font-family: Verdana, sans-serif;"><span style="font-size: x-small;">amongst</span></span></div>
<span style="font-family: Verdana, sans-serif;"><span style="font-size: x-small;">men.
</span></span><em><span style="font-family: Verdana, sans-serif;"><span style="font-size: x-small;">They are at higher risk for anxiety disorders,
substance abuse, somatization </span></span></em><em><span style="font-family: Verdana, sans-serif;"><span style="font-size: x-small;">disorders, and pathological
gambling.</span></span></em><br /><div align="left">
<em><span style="font-family: Verdana, sans-serif;"><span style="font-size: x-small;"><span style="font-style: normal;"><b>Borderline Personality
Disorder</b></span></span></span></em><em><span style="font-family: Verdana, sans-serif;"><span style="font-size: x-small;"><b>
</b></span></span></em><em><span style="font-family: Verdana, sans-serif;"><span style="font-size: x-small;">is associated with a risk for
substance</span></span></em></div>
<em><span style="font-family: Verdana, sans-serif;"><span style="font-size: x-small;">abuse,
eating disorders (especially bulemia), and PTSD. Suicide is completed
in</span></span></em><br /><em><span style="font-family: Verdana, sans-serif;"><span style="font-size: x-small;">8-10% of
patients with BPD (far higher than most mental health
disorders)</span></span></em><span style="font-family: Verdana, sans-serif;"><span style="font-size: x-small;">.</span></span><br /><div align="left">
<em><span style="font-family: Verdana, sans-serif;"><span style="font-size: x-small;"><span style="font-style: normal;"><b>Histrionic
Personality Disorder </b></span></span></span></em><em><span style="font-family: Verdana, sans-serif;"><span style="font-size: x-small;">is
associated mostly with somatoform </span></span></em><em><span style="font-family: Verdana, sans-serif;"><span style="font-size: x-small;">disorders.</span></span></em></div>
<div align="left">
<em><span style="font-family: Verdana, sans-serif;"><span style="font-size: x-small;"><span style="font-style: normal;"><b></b></span></span></span></em> </div>
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<em><span style="font-family: Verdana, sans-serif;"><span style="font-size: x-small;"><span style="font-style: normal;"><b>Narcissistic
Personality Disorder</b></span></span></span></em><em><span style="font-family: Verdana, sans-serif;"><span style="font-size: x-small;"><b>
</b></span></span></em><em><span style="font-family: Verdana, sans-serif;"><span style="font-size: x-small;">is at high risk for anorexia and
</span></span></em><em><span style="font-family: Verdana, sans-serif;"><span style="font-size: x-small;">bulemia......as well as
depression</span></span></em></div>
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<em><span style="font-family: Verdana, sans-serif;"><span style="font-size: x-small;"><strong></strong></span></span></em> </div>
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<em><span style="font-family: Verdana, sans-serif;"><span style="font-size: x-small;"><strong>The most current literature shows thats that people,
particularly with BPD, HPD, and NPD, in attempts to shine the lights on
themselves will show up on the online sites with “horrifying medical histories
to shine the lights on themselves....and tell stories of “courage and dignity”
in the faces of what often woud have spelled death for most~~tests of true
courage in the faces of death for anyone else.</strong></span></span></em></div>
<div align="left">
<em><span style="font-family: Verdana, sans-serif;"><span style="font-size: x-small;"></span></span></em> </div>
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<em><span style="font-family: Verdana, sans-serif;"><span style="font-size: x-small;">And these are often the ones that start the
battles...and they may win that battle, but they lose the war. They are pretty
much on the phone with each other....waiting to post, and then to pull their
respective posts......</span></span></em></div>
<div align="left">
<span style="font-family: Verdana, sans-serif;"><span style="font-size: x-small;"><em></em></span></span> </div>
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<span style="font-family: Verdana, sans-serif;"><span style="font-size: x-small;"><em>You have to watch your back for these
types.......................They sneak up on you...and you know what else??? </em><strong><em><u>If you're so deathly ill, where do you find the time to post about it all day and night long???</u></em></strong> Just wondering....</span></span></div>
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<em><span style="font-family: Verdana, sans-serif;"><span style="font-size: x-small;"></span></span></em> </div>
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<em><span style="font-family: Verdana, sans-serif;"><span style="font-size: x-small;">A word to the wise....I grew up with
one.</span></span></em></div>
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<em><span style="font-family: Verdana, sans-serif;"><span style="font-size: x-small;"></span></span></em> </div>
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<em><span style="font-family: Verdana, sans-serif;"><span style="font-size: x-small;">And </span></span></em><em><span style="font-family: Verdana, sans-serif;"><span style="font-size: x-small;"><b>I was
the one making P4P look bad</b></span></span></em><em><span style="font-family: Verdana, sans-serif;"><span style="font-size: x-small;">?????</span></span></em></div>
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<em><span style="font-family: Verdana, sans-serif;"><span style="font-size: x-small;"></span></span></em> </div>
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<em><span style="font-family: Verdana, sans-serif;"><span style="font-size: x-small;">I recall someone making a look at “the man/WOMAN in the
mirror.....”</span></span></em></div>
<div align="left">
<em><span style="font-family: Verdana, sans-serif;"><span style="font-size: x-small;"></span></span></em> </div>
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<em><span style="font-family: Verdana, sans-serif;"><span style="font-size: x-small;">Boooooo
hooooooo!!!!!!!'</span></span></em></div>
<br /><em><span style="font-family: Verdana, sans-serif;"><span style="font-size: x-small;">Now
wouldn't that suck if our self-appointed moderators good hard at
themselves?</span></span></em><br /><div align="left">
<span style="font-family: Verdana, sans-serif;"><span style="font-size: x-small;">I am totally done with online websites: they have
different names; sites; but it's all the same in the long run: you're stuck with
the same backbiting and BS, passive-aggressive crap you started out
with......</span></span></div>
<div align="left">
<span style="font-family: Verdana, sans-serif;"><span style="font-size: x-small;"></span></span> </div>
<div align="left">
<span style="font-family: Verdana, sans-serif;"><span style="font-size: x-small;">NUTS, is just plain nuts. Especially when your doc is
threatening you with hospitalization because you just feel like you have to keep
responding to the constant barrage of 30+ emails in your inbox~curiousity
<i>killed </i>the cat(fighting) you have to remind
youself.</span></span></div>
<div align="left">
<span style="font-family: Verdana, sans-serif;"><span style="font-size: x-small;"></span></span> </div>
<div align="left">
<span style="font-family: Verdana, sans-serif;"><span style="font-size: x-small;">At least my doc is threatening with <i>medical
hospitalization....not psychiatric!</i></span></span></div>
<div style="clear: both;">
</div>
</div>
</div>
</div>
</div>
Unknownhttp://www.blogger.com/profile/17663204577997946867noreply@blogger.com0tag:blogger.com,1999:blog-3345296248176009885.post-9176364137935951182011-10-02T13:10:00.000-07:002011-10-02T13:10:13.201-07:00Category 2 or 3<h3>
Right now, it's a Category 3....but the Jenna McK Household Weather Service
Predicits the Storm to make Landfall</h3>
<span class="date">~~August 09,
2011~~</span><br /><br />Hahaha, sounds funny, huh?<br /><br />I guess I have always
made the serious into funny by cutting up and cracking jokes, but this isn't
that funny. Every time a stoorm hits Landfall, it's not that freaking funny. Not
to me, and not with a heart condition now.<br /><br />I am sick and tired of "Can
you rate your pain on a scale of 1-10?" Step a little closer next time you ask
me that so I can rip out your throat with my bare teeth...."<br /><br />Clearly, I
am only kidding.....but God, show me that stupid 1--10 scale with the happy and
frowney faces. You will soon be frowning permanenty. Here;s my 1-100 scale--I
think you all know what the faces look like; I am talking
<strong><em>definition:</em></strong><br /><br />1 <img src="http://crps.physiciansforpatients.com/dsrte/images/smiley-cool.gif" /> I'm
cruisin'--wth does pain mean?<br />2 <img src="http://crps.physiciansforpatients.com/dsrte/images/smiley-laughing.gif" />
Couple o' Tylenol<br />3 <img src="http://crps.physiciansforpatients.com/dsrte/images/smiley-smile.gif" /> Just
a little o' pain--but the BTP is an option<br />4 <img src="http://crps.physiciansforpatients.com/dsrte/images/smiley-embarassed.gif" />
Oh, heck, it hurts, dang it--watch the clock!!!!<br />5 <img src="http://crps.physiciansforpatients.com/dsrte/images/smiley-undecided.gif" />
Crap, it hurts--but I'll amputate before I go to an ER: those pllaces are
death-traps, I'll pass on the Venipuncture!<br />6 <img src="http://crps.physiciansforpatients.com/dsrte/images/smiley-frown.gif" /> Back
off!!! I want company like I want another hole in my head<br />7 <img src="http://crps.physiciansforpatients.com/dsrte/images/smiley-embarassed.gif" />
I <strong><em>said, </em><em><u>friggin BACK OFF!!!</u></em></strong> I am
feeling slightly antisocialllll But only <em>slightly</em>!!!<br />8 <img src="http://crps.physiciansforpatients.com/dsrte/images/smiley-foot-in-mouth.gif" />
<strong><em>Touch me, and I'll shoot!!! </em>I am feeling VERY antisocial, so
<em>back off!!!!</em></strong><br />9 <img src="http://crps.physiciansforpatients.com/dsrte/images/smiley-cry.gif" />
<strong><em>Alright, my head hurts, everything hurts</em></strong>!!!!!! I WILL
shoot--this gun is (not <em>really</em>) loaded--><strong><em>but I feel like I am on fire</em></strong><br />10 <img src="http://crps.physiciansforpatients.com/dsrte/images/smiley-yell.gif" /> Make
one more move & your family will be planning a funeral!!!<br /><br />Ok, so I
said, I am a joke cracker when I make the range where gynormous pain is invoved.
And stress.<br /><br />My M.E. is really kicking ars, and I love the cats, and
sometimes I don't know if they are driving me nuts or cuddling and being sweet.
Or telling me something.<br /><br />One of them is a service cat though, and I have
to listen to him: he senses before one of my category 5's hits landfall and
usually before I do. So I generally try and relax. <br /><br />Avoid anything beyond a Category 2 or 3Unknownhttp://www.blogger.com/profile/17663204577997946867noreply@blogger.com0tag:blogger.com,1999:blog-3345296248176009885.post-75681845466386851742011-10-02T10:59:00.000-07:002011-10-06T12:01:06.834-07:00My 37th Birthday<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjDcSm9DGmkt6qKSX54LV1FryZz1FgNM2Lp2g8zhsbYf4UVmUh_sOlXmV7NBZa1MALwppCfpnv4uhmeV2qjotr92YEqkv40pMk7h7T_LgOT72pHaJb6XBVFeU1Q2yk29lhGjyZ_Cm5oVgs/s1600/Photo018A+%25282%2529.jpg" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjDcSm9DGmkt6qKSX54LV1FryZz1FgNM2Lp2g8zhsbYf4UVmUh_sOlXmV7NBZa1MALwppCfpnv4uhmeV2qjotr92YEqkv40pMk7h7T_LgOT72pHaJb6XBVFeU1Q2yk29lhGjyZ_Cm5oVgs/s320/Photo018A+%25282%2529.jpg" width="240" /></a><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhexhxnszuIumSHSx2gEAxLr09g3gswEytgoE2c-qijmPWSi4OOR4aHGsJudVr28B6bgaXnHC3kNis2sTScoYMNyyO9pz-qZi7gBRSUyUjNCtb_tQ_K2d-MLmJ8rUZm0K0-mvLF6yRomBs/s1600/Photo020+%25282%2529.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhexhxnszuIumSHSx2gEAxLr09g3gswEytgoE2c-qijmPWSi4OOR4aHGsJudVr28B6bgaXnHC3kNis2sTScoYMNyyO9pz-qZi7gBRSUyUjNCtb_tQ_K2d-MLmJ8rUZm0K0-mvLF6yRomBs/s320/Photo020+%25282%2529.jpg" width="240" /></a><br />
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<br />
<br />
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<br />
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<br /></div>
Flowers from my brother! My new Lazy Boy!!!!!!!!!!!!!!!!!!!!!!!!!<br />
<br />
<br />
<br />
<div align="center">
Can't wait til Wednesday!!!!</div>
Unknownhttp://www.blogger.com/profile/17663204577997946867noreply@blogger.com0tag:blogger.com,1999:blog-3345296248176009885.post-72912757454921843732011-10-02T10:48:00.000-07:002011-10-02T10:48:33.028-07:00My Open Letter To RSD/CRAPS<span style="font-family: Verdana, sans-serif;">My Dearest
RSD,</span><br /><br /><span style="font-family: Verdana;">I wish like hell you'd
leave me alone.....</span><br /><br /><span style="font-family: Verdana;">I am tired
of the burning pain in my leg and both feet. I am tired, at age 37, of feeling
like I've been to hell and back, and back to hell and stayed longer with each
"flare." I am tired of dreading each flare.</span><br /><br /><span style="font-family: Verdana;">I have already grown tired of the migraines and
helllish "syndromes" that grow with you; I've done nothing to deserve
this.......nothing to put my face on a </span><br /><span style="font-family: Verdana;">"Wanted Poster" that bears either of these
likenessesses on them; and the pain,</span><br />
<br />
<span style="font-family: Verdana;">The being called a liar,</span><br />
<br />
<span style="font-family: Verdana;">Looked at I am nuts when I say I have to keep the schedule of a cat;</span><br />
<span style="font-family: Verdana;">and possess the hearing of a dog........</span><br />
<span style="font-family: Verdana;">A cute baby, a screaming baby..... </span><br />
<br />
<div style="text-align: center;">
<span style="font-family: Verdana, sans-serif;">and the agony, horrible burning pain that goes
with it</span>;</div>
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgJEStmv9-F_YBl1J3agDfLi-wXD5wP7P0tyBLv_jBS1puOdE1LMRMXu_cJ-q7ygZ05IpunKzrkHipIi_OwBrkw_XyakS_Ozt8PXqqpRCaOdWTj0-OAfHrzGlYuMhY2_ElzvJ7B1qn78pE/s1600/OBAMASMOKING.jpg" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><img border="0" height="200" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgJEStmv9-F_YBl1J3agDfLi-wXD5wP7P0tyBLv_jBS1puOdE1LMRMXu_cJ-q7ygZ05IpunKzrkHipIi_OwBrkw_XyakS_Ozt8PXqqpRCaOdWTj0-OAfHrzGlYuMhY2_ElzvJ7B1qn78pE/s200/OBAMASMOKING.jpg" width="153" /></a></div>
<span style="font-family: Verdana, sans-serif;">screeching, screaming, hollering;</span><br />
<br />
<div style="text-align: center;">
<span style="font-family: Verdana;">I want to be rescued, I want to be cured;</span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-family: Verdana;">I want to leave this torture behind...</span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-family: Verdana;">The swelling, the color changes,</span></div>
<div style="text-align: center;">
<span style="font-family: Verdana;">the changes in me</span></div>
<div style="text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgjpeeGkgPfRTr8pUyfcL-onYXXfCypauyBY8zuNOs7qHJx6lTwnedOI3WpsGLjDq3e01UzqiEr8ONy37Bo88GOUCx_Z2biMjsppmTSxilhwe3n2v1nvYgghQ7ChCHtwTa9wI-ZHSYAWus/s1600/bush-faces-of-the-dead-large.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" height="200" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgjpeeGkgPfRTr8pUyfcL-onYXXfCypauyBY8zuNOs7qHJx6lTwnedOI3WpsGLjDq3e01UzqiEr8ONy37Bo88GOUCx_Z2biMjsppmTSxilhwe3n2v1nvYgghQ7ChCHtwTa9wI-ZHSYAWus/s200/bush-faces-of-the-dead-large.jpg" width="170" /></a><span style="font-family: Verdana;"></span></div>
<div style="text-align: center;">
<span style="font-family: Verdana;">When is the next attack going to hit?</span></div>
<div style="text-align: right;">
<span style="font-family: Verdana;"> Lung cancer please? Or if any-</span></div>
<div style="text-align: right;">
<span style="font-family: Verdana;">one deserved RSD, I couldn't</span></div>
<div style="text-align: right;">
<span style="font-family: Verdana;">think of anyone else....how horrible?</span></div>
<div style="text-align: right;">
<br /></div>
<div style="text-align: right;">
<span style="font-family: Verdana;">He cuts my benefits when I need them most,</span></div>
<div style="text-align: right;">
<span style="font-family: Verdana;">and increases his own....you tell me</span></div>
<div class="separator" style="clear: both; text-align: left;">
His face responsible for the</div>
<div class="separator" style="clear: both; text-align: left;">
dead soldiers; men & women;</div>
<div class="separator" style="clear: both; text-align: left;">
mothers & fathers, sons & daughters </div>
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjFWv2px-W9sOY9d9i96yePK2tSHiqDVHNsxjgTKHLlHgfLVlkr4PMY6H-JY25VJ9xfhY1-ETryOi6t3TX96BNXeX-gFyN52GKQr-Xh7fjezIFlR8XHm1xxVH4LM0o0IS2ox3i4lnJhxpI/s1600/Navy+Seal+Team+6.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="239" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjFWv2px-W9sOY9d9i96yePK2tSHiqDVHNsxjgTKHLlHgfLVlkr4PMY6H-JY25VJ9xfhY1-ETryOi6t3TX96BNXeX-gFyN52GKQr-Xh7fjezIFlR8XHm1xxVH4LM0o0IS2ox3i4lnJhxpI/s320/Navy+Seal+Team+6.JPG" width="320" /></a></div>
<div style="text-align: center;">
<span style="font-family: Verdana, sans-serif;">Navy Seal Team 6 gives the fix;</span></div>
<div style="text-align: center;">
<span style="font-family: Verdana;">does the job--now can we leave please?</span></div>
<div style="text-align: center;">
<span style="font-family: Verdana;"></span> </div>
<div style="text-align: center;">
<span style="font-family: Verdana;"></span> </div>
<div style="text-align: center;">
<span style="font-family: Verdana;">Keep cutting programs that I need;</span></div>
<div style="text-align: center;">
<span style="font-family: Verdana;">fund a program of foreign oil.....</span></div>
<div style="text-align: center;">
<span style="font-family: Verdana;">It makes me sick, and food is hard enough to keep down</span></div>
Unknownhttp://www.blogger.com/profile/17663204577997946867noreply@blogger.com0tag:blogger.com,1999:blog-3345296248176009885.post-78261918350213042322011-10-02T04:23:00.000-07:002011-10-02T04:23:34.209-07:00Burning, hot, fire<span style="font-family: Verdana, sans-serif;">Burning, hot, fire,</span><br />
<span style="font-family: Verdana;">skin feels scalded down to the wire,</span><br />
<span style="font-family: Verdana;">open sores picked at and scrubbed</span><br />
<span style="font-family: Verdana;">at with Brillo pads, wire scrub brushes</span><br />
<br />
<span style="font-family: Verdana;">the slightest breeze,</span><br />
<span style="font-family: Verdana;">the smallest bump,</span><br />
<span style="font-family: Verdana;">sends the pain into an </span><br />
<span style="font-family: Verdana;">unending frenzy of tears,</span><br />
<span style="font-family: Verdana;">crying, messy snot and red eyes,</span><br />
<span style="font-family: Verdana;">my leg is red and sweaty,</span><br />
<span style="font-family: Verdana;">my muscle cramps are unbelieveable....</span><br />
<br />
<span style="font-family: Verdana;">The doctors won't say RSD,</span><br />
<span style="font-family: Verdana;">but everything I see reads it like a book...</span><br />
<span style="font-family: Verdana;">I feel like I'm shouting into</span><br />
<span style="font-family: Verdana;">the wind sometimes</span><br />
<span style="font-family: Verdana;">just because this or that symptom isn't</span><br />
<span style="font-family: Verdana;">here or there right there right then</span><br />
<br />
<span style="font-family: Verdana;">Soon it will be.</span><br />
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEikuRFZ2zybNud8wIdNcXqaCZQcFQXA3Thl42S5xipg6CCk9bR4r7-ujKqJLJKoVKmK2BY51ligmJYl9XM5lHHp_1VOlR-tgoVWDL7EO5eUJumYt24X4KfR7uW6XwOtcw_q_8fRQjrd2Ts/s1600/307825_10150289901674110_138035089109_7524238_8227819_s.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEikuRFZ2zybNud8wIdNcXqaCZQcFQXA3Thl42S5xipg6CCk9bR4r7-ujKqJLJKoVKmK2BY51ligmJYl9XM5lHHp_1VOlR-tgoVWDL7EO5eUJumYt24X4KfR7uW6XwOtcw_q_8fRQjrd2Ts/s1600/307825_10150289901674110_138035089109_7524238_8227819_s.jpg" /></a></div>
<span style="font-family: Verdana;">Don't you get it???</span>Unknownhttp://www.blogger.com/profile/17663204577997946867noreply@blogger.com0